Awaiting 2nd MRI for Meningioma: What are possible effects of surgery?
Meningioma in right lower quadrant. If it has grown, what are possible side effects of surgery?
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Meningioma in right lower quadrant. If it has grown, what are possible side effects of surgery?
Interested in more discussions like this? Go to the Brain Tumor Support Group.
@mkoch My neurosurgeon at the UC Davis Medical Center is from UCSF and has specialized in meningiomas for 20 years. I have referrals to Stanford and UCSF as well but chose UC Davis in Sacramento because it’s close to my home in Davis and the neurosurgeon is highly rated. If necessary after my second MRI, I will get other opinions. I’m 74 without one other health issue and was shocked when the meningioma was discovered. So far, there are no symptoms.
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1 ReactionI had a meningioma that was 5.6 cm and had it removed in 2 sections due to the size. After the 1st surgery I did okay but was a little sick from the meds. I lost a little of my peripheral vision and my walking was a little off. After my 2nd surgery I did a lot better and regained my vision, my walking is back to normal and I’m doing great. I am totally off my medications and my ophthalmologist has released me to be able to drive. My energy level is back to normal and I feel great.
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3 ReactionsDo any of you have extreme exhaustion. I Also have low plattlet count (itp) along with my meningioma and don't know which one causes it
@mkoch I like your answer very much because it is what I am facing right now. Small meningioma very near optic nerve but opinion is take it out now. Did you have a cranio and then recovery?
I am frightened and because of loss of my husband, mother and now father, I need to make this decision alone. The first opinion said it was "just" a meningioma so we will do a follow up MRI with contrast in a year. I went for a second opinion because I had been unsteady and there were some mobility issues. The second opinion was at a more major medical center (Georgetown) and after a great deal of studying, the neurosurgeon recommended the craniotomy. It seems the meningioma is very close to the optic veins/arteries. Right now, there is space, but if there is a growth spirt (it is currently 2 1/2 cm) it is a more challenging procedure. This group seems to have been through a great deal, and I do not know if a procedure in my frontal lobe is something to go into and how the craniotomy will impact me and how my brain responds to a surgery in the frontal lobe and if I will have the same emotions (good and bad). For a variety of reasons, there are no family members to discuss this whole thing with and the doctor wants to do the surgery the second week of June. Do I have to write a will? What questions should I be asking the doctor specifically. He has tried to explain but the only risks he speaks about are infection. I always worry when a surgeon makes it seem like it will be very simple and I will not have after effects of losing a lot of advanced education. It seems like there are alternatives, but radiation was not the option he thought was viable. Looking for a mentor/buddy through this. Considering asking for another MRI in July to see if there is growth but not sure if my fear is a reason to put this off.
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3 Reactions@loujo if you’re not completely comfortable with what he’s saying, get a third opinion. I went to three different neurosurgeons, and two of them completely agreed. I would’ve felt comfortable with either one of them. Both of them offered, and scopic minimally invasive approach through the sinuses. My tumor was also 2.5 cm and pressing up against my optic nerves and optic chiasm. I did have surgery, but you should be taking it seriously as our possible complications, including stroke and death. luckily, these are almost always very slow growing and not cancerous so don’t feel rushed into any opinion.
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1 Reaction@loujo I would look for someone from a major medical Center close to wherever you are. Mayo is always an excellent choice, I believe NYU is number one in the world, and there’s excellent centers on the West Coast as well. Find somebody that does the endoscopic nasal approach and does at least 100 or more per year. There’s a good article that states if they do 100 or more per year, the complication rates drop drastically.
@loujo
I understand your concerns. My husband and parents are gone as well. No close friends and two sons who live out of town. Its a lonely life and have to go through this alone is frightening. I also have a 2.7cm meningioma on the left frontal lobe. It was discovered last November due to a fall. Saw 3 neurosurgeons. Stanford and UCSF. Both agreed being I am asymptomatic and has not grown on second MRI in March we will do another one in September. There are a lot of risks with surgery as well.
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1 Reaction@loujo
I had emergency surgery for a meningioma almost 10 years ago at Georgetown. And it saved my life because the meningioma had bled, a stroke. I’m grateful to the surgeon and surgical group that were on duty when I arrived from another hospital at 3:30 am. So far as side effects, yes, I developed epilepsy, but that could have been from the stroke. And I lived. The only other possible side effect and this sounds weird is that I think the area where they peel your skin back to get to your skull gets more dandruff than any other part of my head.
Wishing you the best as you go forward. M
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2 Reactions@loujo
My practical advice is to find out what driving restrictions you might have, if you are driving now. Because of the stroke I had a six month driving restriction which was increased when I started having seizures ( now very well controlled). Also try to prepare for those first weeks at home including setting up some automatic bill pay and arranging for food and meals delivery. It’s likely that you will be yourself, but maybe, not quite so sharp as you usually are, for some months.
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3 Reactions