Looking for answers for chronic pain
My story begins last September. I was a healthy single mom working 10-12 hours a day and highly functioning. My issues started with GI, I had taken Zepbound for 6 weeks and had no side effects until I woke up with abdominal cramping and diarrhea like a stomach bug. 3 days later was the start of chronic constipation with loose stools, hemorrhoids, anal fissures, severe rectal spasms with sharp pain level at a 10 that lasts for at least 5 hours sometimes it’s random like in the night waking me or sometimes after a BM, chronic abdominal pain, fatigue, brain fog, night sweats. I had an X-ray of abdomen, CT of abdomen, flexible sigmoidoscopy, then colonoscopy over the course of 2 months, only diagnosis 2 months in was H.Pylori and I finished the treatment successfully.
I seemed to get slightly better for 2 months then it all came back this March. All the GI and rectal stuff returned, then I started getting severe pain all over my body, jaw pain is extreme to current, GI and rectal has remained through current with extreme flare ups, then 2 weeks ago I was in the ER for Deep Vein Thrombosis and I’m currently on Eliquis, Gabapentin, Tylenol, Clonesapam, and Probiotics. Rarely I start to feel better for maybe a 1/2 day then it’s either my abdomen, my jaw, my neck, my legs, ears, migraines, or any random part of my body that starts with severe pain. Something all at once. This has now been going on for 8 months and has greatly affected my life. My only test that keeps coming back higher and higher is Ferritin with normal Iron. Last week Fertitin was at 379 up from 230 last fall.
My doctor has decided I have chronic pain syndrome but I wonder if there could be more things to investigate. Any advice would be greatly appreciated. I need my life back and my daughter needs her mom back. Thank you!
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I am so sorry you are going through this. I do not have any advice but hopefully someone in our Mayo group will chime in. Best to you!
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2 ReactionsI have a long list of chronic pain..my best solution so far for bursitis and tendonitis has been cold packs..
I’m specifically wondering about what the high ferritin could mean. Like I said it’s been getting higher than normal since last October. I’ve had two doctors opinions. One was concerned and one was not. Thanks
Do you have a rheumatologist? If not, maybe find one.
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1 Reactionhello, i am also going through something kinda similar. for the last decade i have had severe GI issues and gynecological issues where i can’t work or go to school. they have stopped doing tests and said i have chronic pain syndrome and want to send me to a three week pain program but i think it will make me worse. keep fighting for answer. the CPP diagnosis is when they don’t know what to do. u r only 8 months in to ur journey do not give up yet ther could totally be more wrong. chronic pain syndrome does take six month at least of ongoing pain with no cause but like there could be soo many reasons for things that they aren’t possibly thinking of that i have had to think of for my own self. like look into genetic testing i think is a very big first step