1. < Head & Neck Cancer
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Treatment for long term radiation fibrosis

Posted by taylorma @taylorma, May 1 7:56am

I has been 16 years after my radiation treatments from head neck cancer. I have stiffened fibrosis in right side of neck. I was reading about a study with Pravastatin (Pravacur) and Protocol treatment for late stage fibrosis treatment. Has anybody tried this and had ANY symptoms improvement?

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sandy8043 | @sandy8043 | May 15 7:59pm

Sloan Kettering is offering red light therapy to its radiation patients. Here is the article. https://www.mskcc.org/cancer-care/patient-education/about-your-photobiomodulation-therapy

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taylorma | @taylorma | May 16 2:30pm
In reply to @colleenyoung "@taylorma, I found this journal article about a phase 2 study from 2019. - Pravastatin Reverses..." + (show)
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@taylorma, I found this journal article about a phase 2 study from 2019.
- Pravastatin Reverses Established Radiation-Induced Cutaneous and Subcutaneous Fibrosis in Patients With Head and Neck Cancer: Results of the Biology-Driven Phase 2 Clinical Trial Pravacur https://www.sciencedirect.com/science/article/abs/pii/S0360301619302500

I didn't find any published results or recruitment calls for a phase 3 trial. Did you? Have you asked your oncologist about it?

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@colleenyoung I have not found results or phase 3 trials. I have an appointment in June, so that I will having that discussion. I will keep you posted as soon as i get more information.

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josk | @josk | 5 days ago
In reply to @smittyfromcuse "@mwpcaretaker I started red light therapy on my own and it seems to be helping. I..." + (show)
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@mwpcaretaker I started red light therapy on my own and it seems to be helping. I see my Radiologist Monday for a bi-annual check in and will get his opinion and repost here.

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@smittyfromcuse .. appreciate your info/feedback on this red light therapy - I do have myofascial therapy every other week - and would like to look this red light therapy that I can use at home.
I am looking into this on Amazon.ca - but there are so many various devices on Amazon - which one/brand are you using? and is it hand-held?
Thanks.

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smittyfromcuse | @smittyfromcuse | 4 days ago
In reply to @josk "@smittyfromcuse .. appreciate your info/feedback on this red light therapy - I do have myofascial therapy..." + (show)
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@smittyfromcuse .. appreciate your info/feedback on this red light therapy - I do have myofascial therapy every other week - and would like to look this red light therapy that I can use at home.
I am looking into this on Amazon.ca - but there are so many various devices on Amazon - which one/brand are you using? and is it hand-held?
Thanks.

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@josk I am using a small hand held red light device from a company called Joov. It was expensive but I was able to use my HSA dollars for it. I just had my 6 month radiologist visit and he said it can’t do any harm and studies suggest it can help.

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josk | @josk | 4 days ago
In reply to @smittyfromcuse "@josk I am using a small hand held red light device from a company called Joov...." + (show)
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@josk I am using a small hand held red light device from a company called Joov. It was expensive but I was able to use my HSA dollars for it. I just had my 6 month radiologist visit and he said it can’t do any harm and studies suggest it can help.

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@smittyfromcuse many thanks for info - will definitely look into this !!

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