Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
@margottaylor Good for you. Restorative is very beneficial. You can also do it at home with squishy balls, a cervical collar and more props. I am unabashedly promoting daily yoga. Just once a week isn’t enough. My yoga teacher made a pictograph list of postures for me. You are right. It is pretty wonderful. Be free of suffering today. Thanks for posting. Chris
Oh yes home restorative yoga is my go-to with pain, especially Legs up the Wall on a heating pad.
There are wonderful online Free yoga sessions if anyone is interested.
Keep going Chris and other Yogis! Margot
@jeanray -- I am tagging @notborntoburn, @elmay, @pfbacon who have talked about Lyrica in other posts to see if they might be able to share their experience with you.
@grandmar If you're able to get on the floor, you can work on developing your core strength by doing a plank which is the simplest and most effective core strengthener there is. (Google for picture if you're not familiar with the plank)
Thank you.
Thank you!
I just found out that my friend's elderly doggie is taking gabapentin - it was prescribed by his vet.
Hi @grandmar -- Ronnie. My husband John has dealt with Sensory Periphery Neuropathy for 20 years. His neuropathy is due to a genetic disease -- Charcot-Marie-Tooth disease (CMT). You can find more information on CMT at the following:
https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/heredity-disorders/
https://www.cmtausa.org/understanding-cmt/what-is-cmt/
John's neuropathy does not cause pain; however, he has NO feeling below both knees -- He broke a toe last December, and realized it only in the evening, when he took his socks off and saw half of his foot was red and swollen.
In spite of this severe case of neuropathy, John walks "normally", drives "normally", and has no problem on stairs. This is how he has managed to remain so capable: He wore athletic ankle weights for 12 years, every day. This allowed him to strengthen his leg muscles and "teach" other parts of the body to "feel" changes in movement and ground contour. In fact, when asked how is he capable to drive and walk, in spite of not having any feelings in his lower legs, John says he "feels movement with his knees".
Yes, he does have occasional problems and he wears compression socks to prevent swelling.
Hope this helps Ronnie! A hug .... --Dee
Thank you very much for the information!
@grandmar -- Ronnie, John has done very well, in spite of the progression of the neuropathy; you can too!
--Dee