Does anyone have current info (2026) for treating LichenPlanopilaris?
Newly diagnosed with Lichen Planopilaris.
Interested in more discussions like this? Go to the Skin Health Support Group.
Newly diagnosed with Lichen Planopilaris.
Interested in more discussions like this? Go to the Skin Health Support Group.
I can’t find any pictures that really show what they’re talking about.
I have three types of lichen. I have a spot in the back of my hair that I have to put a steroid on every night if I don’t within three days, it is very angry, sore and hurt. It’s flaky like dandruff, but they call it from lichen Sclerosis.
I wish I could’ve found out more
I wish you a very best finding your questions
I was diaganosed with Lichen planus over a year ago. The itching was so bad on my legs they are now scarred . No more itching thanks to Nemluvio injection once month. I do however still have skin lesions. Some make my skin thickened and raw. I put Clobetasol Propionate cream on all my lesions daily. The only ones that have actually healed have had at least 3 injections of steroids!
Don't know if any of this helps. It is Summer and I will wear long sleeves and pants because these lesions look contaigous and are painful when bumped!
I have a question. If the sun makes it worse for you. Then I am questioning if you have an allergy to the sun. It is hard to fine a doctor who much about it.
Photodermatitis. That is what I was told I had
I bought light fabric long sleeve shirts I could put on and off easy. Big hats to keep the sun off my head and so on. I Love color so I bought lightweight shirts, and hats that are colorful. It made me feel good.
Certain times of the year I could be out with no problem, but otherwise my skin will hurt and I will get sores that don’t heal for a month or years. The doctor checked me for something once and it was negative. He put some stuff on my stomach and different stages of light treatment to see if I burned that was negative. I was then told there are many different things in our son and there’s no way for us to test for them.
I wish you the very best