Living with Neuropathy - Welcome to the group

GP sends me to pain clinic, pain clinic send me to neurologist, neurologist sends me to GP. Still no relief. Cymbalta gave me heart palpitations & PVC's, so neurologist switching me to Lyrica. Wow, really depressed & in pain from stopping the anti-depressant 3x/day (Cymbalta). Now BP is even higher. Do I even dare to ask about a patch?

@kansasgal did you see the post to you by @jenniferhunter? She shared some really good alternatives that may help with your pain. Here is a link to her post earlier in this discussion.

@johnbishop Thanks, John! You do a great job sharing information.

you need to be your own best advocate -- keep pushing -- ask for what you feel you need -- you might want to consider another neurologist -- not all of them are as good with neuropathy; find one that will work for you

I have been going around in circles with doctors as you have, but my BP seems to drop but my weight gain stayed the same for 4 months and I barely eat anything at all due to ain I have every time I do eat. The doctors think I have MS but won't test me for it. They are testing for everything else and it's driving me crazy knowing everything is fine and keep getting the medication I don't need. They say I have a chronic illness and put me on depression medication.

What is MS? Do I have anything to worry about, since it's on my report from 1 doctor and they don't want to test me further, or should I leave it alone?

@david33 Join the club of feeling like you are being given the runaround. So many doctors want to test you, diagnose, and then tell you they can do nothing for you. It is a very strange path to learn that you are fending for yourself. Try to read all you can from this site and Peripheral Neuropathy group in Chicago area that casts a wide net. I found I could not live with any of the anti-seizure medications and have found alternatives that have made my life reasonably symptom free over last 10 years. But never give up, your condition and your potential solutions may be different than anyone you will talk to regarding PN. Good luck, I wish you success asap.
MS probably refers to multiple sclerosis. Strange they would suggest it as possible, then not go forward with test for it.

Hi @david33, Here's some information on Multiple Sclerosis from Mayo Clinic that may be helpful.

Multiple sclerosis - Symptoms & causes
-- https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269

Have you thought about getting a second opinion? I agree with @deankmn that it sounds strange that the doctor would suggest you have MS and put it in your charts without any diagnosis/tests.

Hi there, My husband was diagnosed with neuropathy about 2 years ago. He is on Medicare and has a supplement insurance also. We have called the Mayo Clinic in Phoenix and Minneapolis. We were told that their programs were full and they were not accepting anymore Medicare patients. Do you know of anyway that he can get into the Mayo Clinic to find out what to do or expect. Unfortunately where we are living his doctors have just said this is what you have, the information we do have come from groups like this one. thank you for your help.

Hello @alaskapat, welcome to Connect. It might be worth a call to the Rochester, Minnesota Mayo Clinic Campus to see if you can get an appointment for your husband. You can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

Also, you can find out more about billing and insurance at Mayo Clinic here:
https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicare/more-on-medicare

Will your husbands Medicare advantage or supplement insurance plan give him an approval to be seen at Mayo Clinic? I was wondering if a referral from his doctor or insurance plan approval would help get an appointment.

I have a feeling that the key to Mayo Clinic is to become a patient before you are on Medicare. We are patients at Mayo Jax and became patients before Medicare. But we cannot get in to one of their primary care clinics now that we are on Medicare since we never went before.