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I have a Pain pump with Morphine, I'm still in so much Pain

Posted by sox6281 @sox6281, May 11, 2025

After my Trail I did get a lot of pain relief but after that pump was put in I didn't get the same amount of pain relief as the trail Then they told me I just need a higher dose but after 3 months of Adjustments I was receiving 50% more then when it started & I had 4 Boluses that were higher than the trail & still no significant pain relief, I told them I wanted to change to hydromorphone, but they kept telling me I need a higher dose now I'm maxed out of morphine and now they're telling me that I have to dose down all the way back to zero then they can switch me to hydromorphone but in the meantime they're not going to give me anything orally to take for pain, I read clinical trials and also trials that doctors have had with their patients and there's many of them that switched from morphine to hydromorphone when it was time to refill the pump but these doctors are telling me they cannot mix the two drugs even though they pull all of the morphine out of the pump there's only a tiny amount left in the catheter has anyone else had this experience we have to go a couple years to get changed over to a stronger drug?? It seems to me that they can give me a an equivalent dose of hydromorphone and to be conservative give me 25% less, Why can't they switch me when I get my pump Refilled because there's just a tiny amount of Morphine left in the catheter, has anyone had their medication changed from morphine to hydromorphone or to fentanyl?? But without dosing down to zero. I would love to hear from other people that have had this experience morphine did not work for them. Thank You Michael

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sox6281 | @sox6281 | May 7 6:24pm
In reply to @heisenberg34 "@alexandercrps In almost three years I have not had any pain relief from my pain pump...." + (show)
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@alexandercrps In almost three years I have not had any pain relief from my pain pump. It uses hydromorphone after a trial with morphine provided no relief. hydro dropped my pain down to about a 3. I have had the pump checked three times via fluoroscopy. All is well they tell me. As an aside, I had one day of great pain relief about 4 months ago. The next day all the pain was back. I am currently sitting at 3.5 mg/24 hours with six boluses. If I use all six boluses, I seem to experience just a little decrease in pain. Do you know your current pump settings? If your pump is a Medtronic, you can go to the settings on your remote to check them. I wonder if getting the catheter placement by CT is a better option. Thanks for your post. Have a blessed day.

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@heisenberg34
Yes said the hydromorphone got you down to a Pain score of 3, I would love to get to a pain pump score of 3, it would be wonderful

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bilt4pain | @bilt4pain | May 7 7:33pm
In reply to @sox6281 "@bilt4pain I was on the fentanyl patch and it all leaked out through my skin so..." + (show)
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@bilt4pain I was on the fentanyl patch and it all leaked out through my skin so I was in the hospital for 4 days, the doctor removed the fentanyl patch & put me on Morphine oral medication, due to the laws in the State of Florida, after that I had a spinal cord simulator & it helped but not much, I also was on the Morphine instant & extended release which Both were doing nothing so my pain doctor recommended a Intratracheal pain pump, so he referred me to his best friend who does install the Intrathecal pain pump, but I have a high tolerance for morphine so I tried to get them to put hydromorphone from the beginning but they start off with morphine and it just didn't work so I finally just got into the Hydromorphone, I'm sure it will work because I've never been on it before , I didn't think the fitting all would work because I was on it for a while and then it leaked into my system, I have my appendix out and I was in the recovery room can they give me a gram of morphine and a half a gram of fentanyl and it did nothing so I told them to give me Dilaudid and they gave me a gram of Dilaudid and it worked instantly I was out of pain, I certainly hope everything works out for you thanks Michael

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@sox6281 Thanks Sox. I have met many great people in these rooms. But I wish I never had to come here in the first place. Good luck brother!

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