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I have a Pain pump with Morphine, I'm still in so much Pain
Chronic Pain | Last Active: May 22 10:45am | Replies (57)Comment receiving replies
I wanted to give an update, my doctor finally has me on hydromorphone in my pain pump, and the concentration is 12:1 ( that's 12 X stronger than morphine) I've had 3 adjustments but I'm still at 0.01953, & they increase the dosage by 25%, I feel they started me off too low because they knew how much pain I was in I mean I was ready to call 911 everyday and they have me on such a small dose of oral pain medications and it's like taking candy that do nothing, 10 mg oxycodone four times a day but unfortunately I feel withdrawal between my doses and I've tried to get them to just increase my oral doses too 15 mg to 20 mg a day and then I will be able to function because at the rate that I'm on it's going to take 15 weeks before I get to 0.232 not quite a quarter of a milligram, now before they did Max me out on the morphine at 14.8 mgs of the morphine which did absolutely nothing I tried to tell them in the beginning but I've taken morphine for so many years that I have a high tolerance and that I was also on a fentanyl patch 200 micrograms a day so there's a tolerance to the fentanyl but I've never been on the hydromorphone and even the small amount that they adjusted to I do feel something working but unfortunately some days it gets so bad that you just don't feel like doing anything, but at least I'm on a medication that I really do feel is going to work I mean if they could just get my pain down to 50% I would be wonderful but they micro dose you and so it takes forever to get you a targeted rate, I checked with all the clinical trials from the the institutes of Health and peer-reviewed articles from pain management doctors and everyone of them were starting their chronic pain patients at 0,25 to 0.50 mgs
Replies to "I wanted to give an update, my doctor finally has me on hydromorphone in my pain..."
@sox6281 Hi, I have been on a lot of pain meds over time. What I experienced is morphine does not cut the pain (at all) because I have a high tolerance.
Not being a doctor, I googled ‘strongest pain meds’ and got this:
Fentanyl. Fentanyl is a synthetic opioid that is 50-100 times more potent than morphine. ...
If I read your post correctly, they are Microdosing you with Dilaudid.
The ‘0.21…’ numbers are confusing. Do they indicate blood levels?
They should be going by your feedback telling then things like ‘the pain is so bad that I stay in my room all day, barely eating or drinking, etc.’
Apparently they either do not ask you how things are or they do ask you and ignore whatever you say and go by numbers.
The real reason for this is (especially in CA where I live) the laws concerning opioids are so draconian that doctors everywhere are afraid to prescribe anything at all, even Tylenol with codeine.
All opioids have been lumped into Schedule II (morphine, hydro- and oxy-morphone, and Fentanyl).
In any case, I believe that microdosing is the doctor’s way of ‘trying to get the right dose to relieve your pain.’ while avoiding attention from the DEA.
In California, the DEA has been busy, terrifying doctors and pharmacists into compliance with ‘the rules’ written by probably three ‘overseers’. I actually got to talk to one of these guys by phone.
In less than three minutes I learned that these guys don’t give a damn. They just write more and more useless rules to lock opiate prescribing to the bare minimum.
Then there is the CURES report which has been around for decades.
It was implemented to stop patients from doctor shopping or using multiple pharmacies.
Pharmacists are ‘bullied’ by the DEA to check the CURES report each and every time they receive a new prescription.
Doctors are warned about overprescribing.
In any case, these are the real reasons for so-called ‘microdosing’.
Someone else on this thread asked what specific condition is causing you pain.
Did you feel like sharing that?
In any case, you may want to ask around to find a more compassionate doctor.
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@sox6281 You are really on a low dose! My trial with hydromorphone was an injection of 4.0 mg. It dropped my pain from a 7 down to about a 2. I was excited to get the permanent implant on April of 2023. Three years and only ONE DAY of pain relief. I was up to almost 4 mg/24 hrs. Unfortunately, this dosage caused me to become very nauseous, followed by fits of vomiting. So, I had to have it turned down. I think that I am back down to about 2.75 mg/24 hrs. Still no relief. I have taken 90% THC extract. This works well to drop my pain, but it leaves me feeling as if I am in an alternate universe. I will try getting an edible with a lower percentage of THC. maybe some CBD added in. Decisions, decisions. Hope you can find your sweet spot with your pain pump.