Has anyone found a treatment that helps with peripheral neuropathy?

@bb0753
I wander how going to the right to try format is going to help Winsantor. Seems like it will just create more barriers being as you have to travel to Montana. I wander if theyve done any research on how many people would be interested in doing that. They also mentioned right to try programs six years ago on their facebook page. Its starting to get pretty annoying

@megidigo under this expanded Right to Try they do not have to complete phase 3 clinical trial which would be extremely expensive and they will not have to do this to make their treatment available. This is the only treatment that has actually shown to regenerate nerves and was based on EMG and nerve biopsy. In the patent application they listed successful treatment in cases of neuropathy from chemo treatment and diabetes as well as idiopathic neuropathy. I for one am willing to travel to Montana if this will heal my nerves in my feet and eliminate the neuropathy. Previously they were only approved for Compassionate Early Access by FDA and this was limited only to people with debilitating PN from diabetes.

@bb0753
Yup I know and have read all about Winsantor and the trials. I say annoying because everytime I get my hopes up they disappear. I’ve received only one email since signing up more than two years ago and have never had a response back from trying to contact them. Ive heard the same from others. A company giving updates once every two years is not a good look. Their facebook or youtube hasnt been updated in years. I cant get to Montana so again Im out of luck. If the Montana thing happens.

There was a Korean company that was working on a nerve regenerating drug but they folded too.

I posted this also in the sub-comment section on Shockwave therapy, and am reposting here:

I had the first session Feb. 1 and have since have had five - going for the 6th today (May 7). It’s a very noninvasive experience. You lay face down on a massage table, (fully clothed!) and the technician applies a gel, similar to what you get with an ultrasound, on the soles of your feet. Then moves a hand-held device with a broad rubber “head” up, down, across, etc. all over the sole. It’s loud and percussive, and can be a bit uncomfortable, but intensity can be quickly adjusted. 10 minutes total for each foot.
After the very first session, my pain level that night was down by 25%! I’ve been going every week or week and a half. Some people apparently go twice a week, but I found that it would take longer than that for the soreness to go away. Each treatment has definitely reduced the pain and I am now able to sleep through the night, which I consider an absolute miracle. In all, my pain from burning and the “electrical jolts” of pain is down by at least 50%. My readings tell me that optimal results are reached after 6-8 treatments and can continue without treatment as nerves begin to regenerate. You don’t need to go back and restart the whole thing.

Do your research and call around, because lots of chiropractors and podiatrists are offering shockwave. It’s important to find a place that offers Focused, rather than Radial shockwave. Radial is good for muscle pains, but not for neuropathy. Also check prices and be wary of places that want to sign you up for a series and charge you for a consultation, even though you’ve been diagnosed with neuropathy. My treatments are costing $150 per treatment, which includes both feet. I get them at a clinic that also offers stem cell therapy and a lot of other “regenerative” treatments mostly aimed at muscle and arthritis pain. The person who does the treatment is a Physicians Assistant. One local podiatrist wanted to charge me $500 for three treatments on one foot, which would equal more than double what I’m now paying.
In addition, I have been taking these supplements: mythelated B12, ALCAR, R-Lipoic Acid, magnesium glycinate. Also drastically cut sugar from my diet because any sugar means the pain gets worse. Before these treatments I could only sleep for a 3-hour stretch before the pain woke me up. I have tried gabapentin and couldn’t tolerate the side effects. Also can’t take ibuprofen. My doc suggested pregabalin or Lyrica but side effects from those are almost the same as gabapentin. So the only pain reliever med that does anything is acetaminophen and I really, really don’t want to sit around medicating while the nerves continue to degenerate.
Good luck to all of us searching for relief. Shockwave is the only thing that has worked for me.

@carolynpatten

What kind of a dr is this that does that as I live in a small town in Kansas but Salina is only 1 hr from here. I would appreciate knowing what kind of dr that does this. Thank you.

I posted this also in the sub-comment section on Shockwave therapy, and am reposting here:

I had the first session Feb. 1 and have since have had five - going for the 6th today (May 7). It’s a very noninvasive experience. You lay face down on a massage table, (fully clothed!) and the technician applies a gel, similar to what you get with an ultrasound, on the soles of your feet. Then moves a hand-held device with a broad rubber “head” up, down, across, etc. all over the sole. It’s loud and percussive, and can be a bit uncomfortable, but intensity can be quickly adjusted. 10 minutes total for each foot.
After the very first session, my pain level that night was down by 25%! I’ve been going every week or week and a half. Some people apparently go twice a week, but I found that it would take longer than that for the soreness to go away. Each treatment has definitely reduced the pain and I am now able to sleep through the night, which I consider an absolute miracle. In all, my pain from burning and the “electrical jolts” of pain is down by at least 50%. My readings tell me that optimal results are reached after 6-8 treatments and can continue without treatment as nerves begin to regenerate. You don’t need to go back and restart the whole thing.

Do your research and call around, because lots of chiropractors and podiatrists are offering shockwave. It’s important to find a place that offers Focused, rather than Radial shockwave. Radial is good for muscle pains, but not for neuropathy. Also check prices and be wary of places that want to sign you up for a series and charge you for a consultation, even though you’ve been diagnosed with neuropathy. My treatments are costing $150 per treatment, which includes both feet. I get them at a clinic that also offers stem cell therapy and a lot of other “regenerative” treatments mostly aimed at muscle and arthritis pain. The person who does the treatment is a Physicians Assistant. One local podiatrist wanted to charge me $500 for three treatments on one foot, which would equal more than double what I’m now paying.
In addition, I have been taking these supplements: mythelated B12, ALCAR, R-Lipoic Acid, magnesium glycinate. Also drastically cut sugar from my diet because any sugar means the pain gets worse. Before these treatments I could only sleep for a 3-hour stretch before the pain woke me up. I have tried gabapentin and couldn’t tolerate the side effects. Also can’t take ibuprofen. My doc suggested pregabalin or Lyrica but side effects from those are almost the same as gabapentin. So the only pain reliever med that does anything is acetaminophen and I really, really don’t want to sit around medicating while the nerves continue to degenerate.
Good luck to all of us searching for relief. Shockwave is the only thing that has worked for me.

@gnocchi As I noted, shockwave is offered by a lot of podiatrists and chiropractors. It does not have to be done by a doctor, and I think very few doctors do this. It’s too simple for them!
Do a Google search for “shockwave therapy” in your area and you should come up with a lot of results.
From there, I suggest calling and asking about
1) Is it Focused or Radial? You need Focused.
2) what are the prices for each treatment and do they charge for a consultation? They should not charge just for the consultation.
3) How many treatments do they recommend - should be 6-8 for neuropathy
4) Do they require you to sign up for a series? They shouldn’t.
Good luck!