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DiscussionGuilt of being a transplant recipient
Transplants | Last Active: May 5 10:52am | Replies (9)Comment receiving replies
Replies to "Good afternoon from Canada 🇨🇦🍁. I know exactly what you're speaking about. I had so much..."
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@footballmum Thank you for your response. I really appreciated you taking the time to write it. I have read responses from others on here and I love that we are here to help each other through these times. Lately I have been reaching out to some people who are going through the process of seeing if they are able to be put on the transplant list. The easy part is saying well this is what they want to hear, see and you should do. The hard part is reliving the experiences to answer questions like how bad does it get, was it worth it, would you go through this again. What to expect. Remembering routines what I could do, what I learned I could eat or not eat. Reliving the pain and memories, I had a surgery to repair a failed liver stint while I was awake and alert just to have another botched surgery. All the paracentesis. I don’t want to scare people by telling them all of what you are really going to go through because I don’t want to deter them. It’s amazing the relationship you get with your para team. I remember a nurse telling me she loves her para patients. I asked her why, she said “because we get to know you” that’s how often we see them. It’s a lot of nightmares I want to forget. I just want to be able to help others but while doing so it’s funny how I end up needing help myself. I don’t really talk to my wife about it. She has a hard time thinking about it. I just wrote this because I feel I needed to say this to someone who probably can understand and that maybe just saying this and getting off my chest a bit can help.