1. < Polymyalgia Rheumatica (PMR)
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Is it really PMR if symptoms aren't upon awakening?

Posted by joyl263 @joyl263, 3 days ago

I have been following multiple groups including this one to see if anyone's experience is similar to mine. I have the classic PMR symptoms (hip, thigh, shoulder and upper back ache, fatigue and weakness)except that I wake up feeling fairly pain-free in the morning. Then as I go about my day and start to get active the pain comes on with the fatigue. Rest and over the counter pain meds seem to help. I do get the stiffness in those same places after brief rest and when I'm trying to get up. My lab work shows some inflammation. I have two other autoimmune diseases, Vitiligo and alopecia areata. It's so confusing to me that I don't have the worst of my symptoms when I wake up. I wonder if there's anyone else out there that has a similar experience or am I misdiagnosed? I do see a rheumatologist and I was diagnosed after finding relief with prednisone. I ended up being on it for 9 months and slow tapering off and within a week my symptoms came back. Now she wants to start me on kevzara.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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judy15 | @judy15 | 1 day ago
In reply to @suetex "I had PMR a few years back and was treated succesfully (pred) for it. Recently, I..." + (show)
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I had PMR a few years back and was treated succesfully (pred) for it. Recently, I had a mediport installed and the surgeon used a general anesthia on me. I woke up fine but soon had a PMR like (but much worse) reaction. Not wanting to take pred I dicided to tough it out-and no one would listen to me anyway. It was 4 days before it started to get better. Then it was over a week before I was normal. Told my PCP about it so it could be recorded.

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@suetex
What was the medicine in the Medicare?

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judy15 | @judy15 | 1 day ago
In reply to @judy15 "@suetex What was the medicine in the Medicare?" + (show)
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@suetex
What was the medicine in the Medicare?

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@judy15
What other medicines have people taken besides prednisone?

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brittg | @brittg | 14 hours ago
In reply to @judy15 "@brittg did it work for you or did you get some side effects. I really don’t..." + (show)
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@brittg
did it work for you or did you get some side effects. I really don’t want to take it!!!

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@judy15 Rheumatologists have tried various medications trying to get me off Prednisone. I didn't react well to any of them so am just resigned to Prednisone. Currently at 15mg as I had a bad flare into my thigh - (prior flares always been in knee area) so I'm back to Square 1 - tapering back to 10mg or lower.
I won't consider Kevzara - scary reading about side effects.
Good luck -

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tweetypie13 | @tweetypie13 | 10 hours ago
In reply to @judy15 "@jojam I don’t have those symptoms, I wake in the AM with muscle/joins tight and I..." + (show)
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@jojam I don’t have those symptoms, I wake in the AM with muscle/joins tight and I do stretches and use stretch bands and roll a ball up a wall and then walk 2 miles outside or go to a gym class every few days… I’m still on prednisone, right now 2mg but this is not enough but I can live with it…

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@judy15 at wake up, I use Tylenol for Arthritis, take 1 , and it has me comfortable by the time bfast is over. I have also tried 1 at bedtime and it makes the morning very easy.

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tweetypie13 | @tweetypie13 | 10 hours ago
In reply to @judy15 "Why does every rheumatologist offer only Kevzara? IT has terrible side effects!! What other medicines is..." + (show)
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Why does every rheumatologist offer only Kevzara? IT has terrible side effects!! What other medicines is out there for PMR?

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@judy15 Kevzara is my savior, nor side effects, also not on any other drugs.

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tweetypie13 | @tweetypie13 | 10 hours ago
In reply to @tweetypie13 "@judy15 Kevzara is my savior, nor side effects, also not on any other drugs." + (show)
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@judy15 Kevzara is my savior, nor side effects, also not on any other drugs.

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@tweetypie13 PS:….: I never read anything abt bad side effects with Kevzara.

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