@janiceem My experience is similar to yours. I started with higher dose of prednisone probably because inflammation marker was high at beginning. It has been a year and a month and I have tapered to 1 but have trouble going lower, even 1mg every other. I am at a point of deciding whether to go off prednisone and accept my pain in bed, which is getting worse.. Every morning I have to remind myself that it will get better when I get out of bed, start moving, and even do some stretching exercises. Such a strange disease.