Orgovyx.......... not so great. Radiation.....almost pooping my pants!

The pooping problem does happen to a lot of people. I was just speaking to a friend of my brothers that had it happened about 10 days into his radiation. That was after he was having serious burning problems while peeing. A few days after that problem started happening with pooping he found it got better, Even though he wasn’t finished with his final treatment until yesterday. He was having 20 sessions but because he was having such serious problems they were having him take off Friday so he had a three day Weekend to recover some.

Now the hot flash problem. I used to get really serious hot flashes with ADT. The sweat would pour down into my eyes and at night I’d wake up with a sheet, completely wet under me. After a year, my oncologist recommended I get a depo-provera shot And it pretty much stopped the hot flashes, Almost completely until I went on Zytiga. It’s a shot you get every three months. It does not cause breast enlargement. I’m including a slide from one of the doctors at Mayo that did a talk about how to resolve hot flash problems. It discusses a lot of different drugs you can take. I am on a lot of gabapentin and it didn’t help me at all.

I’ve been wearing an Embrlabs wave device For about five years. It has helped a lot and almost completely stopped my hot flash problem at night. During the day, it was not as successful when I had really severe hot flashes. You have to make sure to hit the button for daytime flashes as soon as you start to feel it coming on.

I’ve been working with Embrlabs For five years and have reported many bugs in the Software. They fixed them all. I also did a one hour talk on the Her podcast, with their medical Advisor, Discussing how men get hot flashes too.
https://support.doctorpodcasting.com/client/her-radio/item/45742-men-get-hot-flashes-too
To set the device for the best configuration
Click the bottom left Feel button, scroll down to hot flashes and click it. Scroll down the hot flash cooler five click it, click on “hot flash cooler five” and hit start session. Click the Now round button where you hit start and it will stop the session. Now go back to the main feel screen. Hot flash cooler 5 Should be first in the list, hit the three dots in the right corner, Click on edit and make the temperature level maximum a five. Hit. Save Session. Want to repeat this for all night cool. Click the bottom left Feel button, scroll down to hot flashes and click it Pick all night cool, set The number of hours you want And start it. Then stop it and go back to the main feel screen all night cool Should be the first thing listed. Click the three dots select edit put the cooling on maximum all over to five and hit save session.

Now You have to set the buttons for what you want. To do that you go to settings/session presets. Click on “dotted button” and pick the hot flash five minute. It will probably be second in the list. Select it and hit OK.
Click blank button And select all night cool. Hit ok. DONE!

You now are configured hit the button with the raised dot two times and it will give you five minutes of cooling. Try hitting it the moment you start to feel the hot flash. It will come on a little bit and then will not get so intense.. When you’re ready to go to bed, double click the blank button and it will send cold waves. Occasionally you won’t even notice it at night, but it should stop flashes.

You can always reduce the cooling by following the above instructions.

you were wise not to go with megestrol ( megace) it has far worse side effects than the ADT. You might try taking vitamin B6 for the hot flashes. I think you will find all the extreme ADT side effects mitigate some as you get thru first 2 months..

( I have been on ADT 10 months- just got a Rx for the megestrol early April..that shit is nasty.. by far worse side effects than the ADT... muscle aches, rash, bloating, gas, weight gain, flu like symptoms...how do people take that shit?? it was prob my worst 2 days since my PC diagnosis..or right up at the top)

Good luck and dont give up.

you were wise not to go with megestrol ( megace) it has far worse side effects than the ADT. You might try taking vitamin B6 for the hot flashes. I think you will find all the extreme ADT side effects mitigate some as you get thru first 2 months..

( I have been on ADT 10 months- just got a Rx for the megestrol early April..that shit is nasty.. by far worse side effects than the ADT... muscle aches, rash, bloating, gas, weight gain, flu like symptoms...how do people take that shit?? it was prob my worst 2 days since my PC diagnosis..or right up at the top)

Good luck and dont give up.

@xahnegrey40 lololol. Went to my PCP and she suggested back cosish. Said it did really great for her.

If I ever give up on coping with Orgovyx side effects I'm going to try estradiol.

@climateguy

Yes, I was wondering why nobody tries that ? Some studies showed that it works in about 80% of people and it has many other benefits , like helping with bone loss etc.

Yes, it can cause breast sensitivity and small enlargement but ADT and progestin can also cause that.

@surftohealth88
50% of men on estradiol get breast enlargement. It is recommended to radiate the chest before starting it to prevent it from happening.

I know a few people on estradiol and they are quite happy with it.