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Want to connect with people who have Coronary Microvascular Disease (MVD)
Hi I have joined this group in the hope of connecting with people who have Microvasculer Heart Disease, other wise known as Syndrome X, I have this problem and do not know anyone else who has. There is no cure and It is not easy to treat. I am interested to find out how others cope, particularly the medications that are working for them.
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Hello aesmayo01. I am very interested in the coronary reactivity test you will be having for MVD. I don't know what kind of substance they will be giving you. When I had my Stress MRI I was given IV Regadenisen. I hope this test provides you with some answers and a treatment that can help you. Please keep in touch.
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2 ReactionsHi. I am on here to connect with others who have coronary mvd too. I am curious how you cope. I can't do much without pain and exhaustion. I've gotten a wheelchair for long distances and to bypass stairs and sometimes o2 helps. Any pointers?
Hi when I found out my blood pressure was over
The roof
I say my family doctor, send me see cardiologists
Before I say cardiologist the order MRI STRESS WITH
CONTRAST DYE
That’s how I know maybe 3 years
I taking meds
I had two stress test last year another coming in
September
I also have two stents ,I did cardio rehab
3 months
I am still excising do cardio
You try cardio rehab ask your doctor
I see people in wheelchair go
And leave at end walking
Let me know your journey 👌
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3 ReactionsIt looks like this thread is very old, but I’m interested in how this is affecting others.
I’m 74, and I’ve been told I “probably” have Small Vessel Disease. It was by process of elimination. I had a stress test that indicated a blockage, but the follow-up angiogram of my arteries showed they were only 30% blocked. Thus the diagnosis. In researching online, it seems like SVD was only discovered fairly recently and there are a lot of various names for the same condition, including MVD. Not only that, but doctors differ widely in their knowledge about it and the impacts it can have.
My symptoms are angina, shortness of breath, and fatigue with exertion or stress. I take a beta blocker & a statin. I’ve also have mild depression, so also take meds for that. I’m sure the meds contribute to my general lack energy. I still go for daily walks, aiming for 1-2 miles, and eat a vegan diet.
I can’t tolerate nitroglycerin because it gives me migraines.
Anyone out there want to share experiences with this?