Prednisone side effects on partner

Thank you for reaching out!
It sounds like we have a lot of similarities.
Since my original post my husband was just starting Remicade and now I believe he is on Stalera now and finally fully tapered off prednisone as of a few months ago. I think they are still navigating his dosages but life was starting to feel back to normal…(ish) it took me a while to trust him or feel close to him I felt very resentful and too had to process the really meant things he said and did to me. We were on the verge of separating because it was getting so bad. I slept on the couch sobbing every night because I felt a monster because he was the one dealing with this awful disease… and (this sounds bad) but a little afraid of him. THERAPY! and
support groups actually helped a lot and helped me better understand what the prednisone was doing and how I could best act around him to not triggered that”flight or fight” response.
Things did started feeling normal… I felt like I was getting my husband back and then out of some screwed twist of fate… I became seriously ill and now I am on a high dose of prednisone. I swear it feels like a messed up fever dream. There are no words to tell you how devastated I am (when I’m able to feel things) that after we were getting our lives back here I am on the other side. Fortunately I learned ALOT from these support groups, no my triggered and try to be very communicative about what’s going on with me prednisone wise so my loved ones that there is certain times of days I need to stay in a calm peaceful place and not to get me worked by bringing up high energy, emotional or heated convos topics. At least my husband understands. Unfortunately / Fortunately I can’t work so I always have to be calm and serene because of how sick I am. Be that as it may, I appreciate you sharing your experience and will take that to heart. I don’t want to be sick and loose myself.
Take care of your self and I hope you and your husband both get closer to normal as soon as possible.
-Rose

Enough it does - just. ( I take iv Orencia, Cymbalta, Tylenol and Gababentine very occasionally for restless legs)
As for lemonade … yes! An active ( if always dealing with ‘The Pain”). life of walking, biking, skiing, kayaking, multi day boating, golf, tennis and Plein air painting, volunteer work, travel and running my own illustrator representation agency for years in various combos! And family! I am grateful for prednisone - tho I realize it’ll probably end me too - I really lived! We need to be grateful in spite.

Thank you for sharing! Makes me want to cry..(in a good way!)
As soon as my husband went on off prednisone I became extremely ill, i cant’t work or do a whole lot but low energy things. I refuse to be a pessimist! I’m on a very high dose so I’m definitely feel the negative side effects but (even though I ironically can’t have any citrus right now;) I’m still making the dang lemonade. I worked as a chef but now trying to master the art of gf baking when I have the energy. I can’t get a Michelin Star now but I get to look like a Michelin man! (Still have a sense of humor) I’m an artist and haven’t had the time to finish and start so many pieces till now, my husband works all day into the late evening 6 days a week but I have a dog, 2 cats, a baby bunny, a hamster and a 20 gallon aquarium full of colorful fish… so I feel like Snow White… or Cinderella? Either way… a moonfaced princess still smiling with spite. I know I’d be living in the hospital or dead now if I didn’t have it part of my treatment. Knowing how many things you’ve been able to achieve, beautiful experiences and a family!…. With the support of prednisone. REALLY puts things in perspective! I appreciate your encouragement and light.
-Rose

I’m glad you are still smiling too! Oddly I have lost too much weight lately- but my cheeks look chubby when I smile… so more of that!!! Keep it up too

I am having the same experience. My husband treats me horrible and threatens divorce. Everyday I must read the room a the can go from nice enough to angry quick. It is an awful way to live. Gives me anxiety.

My hubby was on predisone prescribed by his kidney Dr he also has altimerzs so i give him his meds but i caught him a couple times trying to take his meds again. Apparently he did it more often than the two times i caught him as per drs orders he is suppose to slowly taper off of them well i cant do that as he has none left. he had diareah for days so talked to his primary dr she said hes probably dehydrated so take him to ER but he wont go. Now he is sleeping all day than going to bed again at 6 so hes up approximately 2 hours. He isnt eating correctly when hes sleeping all day. I am his wife and caregiver but i am about to give up as being a caregiver is a 24 hr job adulting is hard. Need answers as to what I should do its Saturday today and its 2:30 in Wisconsin and hes not up yet. HELP????

You possibly need more help than this group can provide. I would start by calling his PCP and telling that doctor what exactly is going on. The one thing I know is it is difficult to impossible to help someone if they refuse your advice/assistance. You need to take care of yourself and not allow your husband to consume your energy. I know you care about him and love him, so that makes it nearly impossible to bare. He may be depressed, but I certainly cannot Dx him. Reach out to his doctors.

@carolhl12024 This is a common and difficult daily burden for many people with cognitive issues.
Ask your doctor to prescribe a locked, timed medication dispenser. Then once a week to once every 4 weeks, load it with his meds and set the timers and alerts. LOCK UP the rest of the medications.
Also, sleeping too much, not eating and drinking enough can be an indications of advancing Alzheimer's - has he been evaluated to see what stage you are dealing with?

No he has not been evaluated to see what stage he is in. I am new to ALL this i have no idea of stages. So do they just keep experience stages until they pass? I despise this disease its horrible. He has COPD and bi-polar also. I guess I am totally confused and I am getting scared and lonely. I talk to him like nothings wrong mostly he just stairs at me. Funny he inherited yelling from his father..Heaven forbid if I raise my voice than he raises his and says you don't have to yell at me. This is my second marriage I moved away from my children who I barely see but talk to them constantly to be with this man in 2006..married in 2008. Its been a true learning experience at 73..looking back bi-polar, alzheimer's doesn't exist in my family who are mostly deceased. He also pounds his feet when he walks which he barely ever does..walk that is. I wish I could just run away and hide as if the role was reversed he'd probably expect my kiddos to take care of me as he goes back to Indiana. His children do not talk to him..it had to be a mess as his 1st ex-wife who he married twice has b-polar and so does the daughter that's one house i would run away from back than. Thanx for your help

I was put on Prednisone for months for an autoimmune disorder. MY lifelong personality changed and I didn't even know myself. I was mean about things that I never was before the Prednisone. I told someone at work to F off!!!
I was not me anymore. It's the steroid that is hurting your partner. See if he can taper slowly off of Prednisone. I am doing that now. Many doctors don't even know about steroid reactions. They don't teach it Medical schools!!! Find a doc that knows more. Be patient and take care of yourself and your own needs first. Your husband is not himself because of the steroids! It happened ti me!