inflammation at C1, C2 of cervical spine causing cervicogenic headach

@docb99
Did you ever get a diagnosis and treatment that worked?

Hi Kathy,
What is the cause of the inflammation at the C1-C2? My neck pain is caused by arthritis pressing on the nerves between the C1-C2. The first 3 ablations and cortisone injections worked but the last ablation and cortisone did not work.
This is a very risky procedure. Good luck to you

@beachlife67 I have had multiple diagnoses because I’ve learned that you can have more than one type of headache.
Occipital neuralgia for me responded best to steroid injections in the greater and lesser occipital nerves and auricular nerve. It eventually went away.
Cervicogenic headaches are broader term that for me were likely related to neck tension. They respond best to muscle relaxing through heat and stretching and headache meds of some sort.
The most recent headache doc I’ve seen was the most helpful in saying that if you are a headache sufferer you can have different headaches and may need different interventions.
I kept thinking I have migraines but they were acting like other types of headaches. Realizing that my headaches might not all be the same was helpful.

@docb99

I also have multiple issues, trigeminal nerve, occipital nerves, feels like the muscles are pulsating in the back of my head from my neck. A band of pain goes up from behind my ears and wraps around like a headband. Sometimes I feel like I have a red hot beanie sitting at the top of my head, or like something is trying to break out of my head at the top. The pain constantly changes and I’m dizzy/light headed/off balance 24/7. All imaging does not show anything. Nothing has helped in 2 1/2 years.

@docb99 I have what I think is ocular's headaches my eyes feel stressed and I have an aneurismin my brain near the optical nerve. All of a sudden I lose my balance head feels heavy and it hurts to hold it up. The neuro Dr says I will not know if it burst and nothing will happen. But Mayo Clinic says it lying near the ocular nerves and if they operate it could cause blindness. So now I am confused! Did the Dr mean I will die if it burst by saying I would never know it burst. Anyone have brain surgery on aneurism near optical nerve. If so let me know how it went.

C1 C2 stenosis alongside all 7 dics gone ..
Headaches I can differentiate
Aura headaches fractured eyesight more so right eye last about 20 mins, fatigued
Then the headaches from the base of neck up round left ear numbness & the pain to describe is like my brain is been shrink wrapped by my skull its awful. Pulsating tinnitus due to squashed internal veins bouncing off internal ear drum ..Im reluctant to have surgery its too close to brain stem plus have exactly same issue lumbar ..all 5 dics gone with Stenosis more so leftside but I get on & im aware just how bad it is ! Have directly number for consultant which if things get worse Ring him ..im now veering off when walking no control ..ive to stop collect myself & start again To an observer they must think im drunk 😁 to me im pissed off with not been able to stand up straight but hey they is always someone else worse off😉

@nanniesue4 I am so sorry that you are experiencing this. If you are able to receive care at Mayo, you are very lucky and in good hands. I hope you receive helpful answers.

@docb99
I wish I knew if they could fix this and I would take the trip in a second!