Long COVID exists for 5+ years: Share what has or not worked for you

@po777

Have you tried olfactory training? It works for some people...

Is that smelling the essential oils?

For those patients that have had lung nodules found during MRI or CT Scans after contracting Covid-19 did your doctor confirm that the nodules were form contracting covid?

@arichards3 2 months since this post and 4 months since beginning treatment, my health is returning and I can see the light at the end of a 4-1/2 year long tunnel. Wonderful to feel good again!

Long-COVID contracted in May of 2023. Remaining symptoms: need 10 to 12 hrs sleep/night, still very little sense of smell or taste. At age 85, I'm glad I don't have to work.

I have had so many tests and feel the doctors are not talking to each other, one said to have lungs checked another said heart and lungs are fine. One doc told me that sleep apnea causing my issues and test was negative for any evidence of sleep apnea. I get conflicting information and feel a need for all docs to meet to discuss my symptoms and case.
It is very frustrating going through this for 5 years with high charges to my health insurance and my out of pocket expenses with no results, my symptoms are getting worse to point where I do not want to run or swim anymore.

@rgoldstein909

I have also been battling this for over 5 years. Definitely good and bad days, more worse than good and my symptoms of exercise intolerance are getting worse. Meds I have been on have not helped and had serious side effects. I was a solid endurance athlete since 2009, and right after the vaccines my endurance went off a cliff, blood clot, extreme high heart at low pace activities, gained 20lbs not being able to work out, brain fog, ringing/hissing in ears, lower leg pain feels nerve related, biting in legs on some night with both affecting my sleep. Slight headache all day, abnormal blood flow to brain, affects running and swimming worse than cycling.
Have had so many test tubes of blood drawn, was in research study at Mayo for Long COVID cognitive issues, told they do not know what is driving my symptoms post vaccine adverse effects.
I had a doctor outside of Mayo deny treating me when asked I need to know what these vaccines did in my body and he stated “not going there” and walked me out.

@tcastigl1 You seem to have experienced many of the same symptoms I'm dealing with; however, I believe yours are more severe. After nearly five years, my main symptom (sort of like background noise) is fatigue. I had cleared most of my symptoms a few years ago and was encouraged by my primary to get the booster for that year. Within days I was set back with all my symptoms and it took months for them to subside and I have never got back to where I was before the booster. At this point I have intermittent fatigue and definitely PEM (countless times), cognative issues, muscle and joint pain from my hips down, neuropathy in my feet, recurrent tendenitis in my fingers and wrists, sleep disturbance, and some mild GI issues that come and go. I have Kaiser Insurance and they have yet to really recognize LC. They treat it symptomatically: I've seen numerous specialists all treating in their particular field of expertice but no one is connecting the dots. They are treating me like I am five or six different bodies. It is terribly frustrating. I live in Northern California and the only two LC Clinics are with the Stanford Medical Center and the UC Davis Medical Center. Both have over year long waits lists just for first visit and they will not see you unless you have been tested positive for COVID professionally, i.e., a home test positive reading will not suffice. And, naturally, both are very expensive. There are millions of us out there and there will continue to be more each and every year but the medical health industry seems not to have accepted this fact or prepared for it. At 77 years old, I likely will not see any great interventions in my lifetime but I am saddened to think of all the younger people suffering from LC and more to come.

Six years for me. The LC clinic I had (in Montana) closed. I've tried various medications and supplements. The SHINE protocol by Dr. Teitelbaum seemed to help energy, but couldn't afford to continue. Nicotine gum helps fatigue. But nothing to help resulting blood disorders and compromised heart and lung function. I have at least five more years before I could even consider retirement, but I'll need to keep working due to financial pressure. After all this time, I don't anticipate getting my pre-covid stamina back. I do want to try fasting again for autophagy. Good luck, everyone. It's hard and depression from loss of health is also real. I am 61 and feel 90, although I actually know some 90 year olds who are in better health than I am.