Platelets Too Low for Chemo Infusion

I saw the respiratory surgeon yesterday. It may not be cancer! Very hopeful it is Sarcoidosis, which is a benign inflammation that collects in lymph nodes near the lungs initially. The biopsy is today.

@jenelleseaman Is your biopsy today? I am hoping it is the benign inflammation that your respiratory surgeon suspects and that this can be treated.

Please let me know how the procedure goes for you? It may be a few days or more before you get the results of the biopsy so will you also come back and let me know what you find out?

The procedure went as planned. The surgeon needed to collect enough tissue to perform all the tests, so my throat was quite sore, but it was okay 6 hours later. I’m told my blood pressure dropped while under anaesthetic, but I’m fine. I see my oncologist on Thursday 22nd May. I’m still hoping it’s the sarcoidosis option!
I went to a different hospital than usual because that’s where the surgeon was working yesterday. Everyone that asked about my history were impressed at how well I look considering everything I have gone through. God has been good to me for so long. I have been rescued from situations that could have been fatal many times. Thanks for caring. Jenelle

So happy to hear this, Jenelle! You have so many people cheering you on! < 3< 3< 3

What is C125

@jacklyn A tumour marker for ovarian cancer. If elevated, there’s something amiss in the abdomen …

@jenelleseaman CA 125 is also a marker used in the detection for serous uterine her2+ cancer.
I am on a maintenance treatment with a targeted chemo called enhertu. It is fairly new in treating my cancer, approved in summer of 2024. I have a 30 minute infusion every 4 weeks and prior to treatment my blood is drawn and CA 125 is monitored. It elevated twice since my initial diagnosis in April 2021...stage 1A total hysterectomy...brachytherapy 3 times and then followup every 3 months with survivorship nurse...no blood drawn! In 2022 after much stomach bloating and being told it was classic IBS, which I never had, after a CT scan cancer had recurred and CA125 was 400. After 6 rounds of carboplatin and herceptin my CA 125 was normal under 35. Scans were clear until April of 2025 after slow trending up of CA 125 from 15 to 70 over 6 months and no symptoms, a PET scan showed very small activity in 2 pelvic nodes. I began infusions of enhertu on May 7, 2025...After 2 treatments CA 125 was in normal range at 25....has remained between 13-16 since July 2025. I had an infusion today and my CA 125 was 14 ! For me my cancer is very sensitive to CA 125 and I do not have ovarian cancer, but it is closely related...perhaps because it is her2+....all of this to clarify that CA 125 is used as a marker for more than ovarian cancer ...best of luck to you !!!

@korinja I share the same feelings. Being all alone. Asking too many questions and still having to research. What I've discovered is frightening. They don't tell you everything. It's a place that is so isolating and much is left to the unknown. Yet here you are. Still going. Still self advocating. Seeking the truth. Wanting to live. I'm totally with you. I'm deeply saddened to read your journey with cancer care teams who tell you to have a nice day. Yet there are so many like myself who totally understand what you're going through. I'm here to support you!!! Keep going. xx Linda from Long Island, New York.

Hi. During my treatment, I had 3 blood transfusions b/c of low platelets. It meant my chemo (same cocktail as yours) had to be delayed. I was quite weak, but after the transfusions, I could tell it helped, and my Dr was able to reduce the carbo for my last 2 treatments. Next month, it will be a year since my last chemo, and I can honestly say it feels like all of that (diagnosis, surgery, recovery, chemo, radiation ) happened to someone else. Your body can handle a lot more than we think, so try to reduce that fear, listen to your Drs, and ask lots of questions. One day at a time, and just get through that day and get back up. It really does impact how you heal.