I am on Forteo injections. I beginning to think this is a money maker.

Posted by vmcgrantham @vmcgrantham, Apr 27 5:47am

I’ve been on Forteo for about 4 to 5 months and all I’ve been having is flu like symptoms. I’m still on and off. I’ve been having the jaw pain teeth pain like all my teeth hurt, sensitive teeth, my legs. I had previous fracture in my legs from a car accident and my legs hurt, but this on this medication so much all my muscles, including in my arms hurt like everything hurts and I’m wondering now if there’s a natural way to do this I’m wondering if this is a money maker cause I’m seeing that a lot of people are saying that these things do not help cure anything they just help maintain but a lot of people are having more breaks and then once you’re up, it really gets worse because they say that it like regresses after you get off the medication or injections so what good is that if I’m taking an injection and then I get off the injection and start taking natural stuff it’s saying that it regresses your bones more so what’s the sense of being on it if it’s gonna make it worse in the end I don’t wanna go on reclast, or prolia i’ve had many kidney problems in the past and I have an autoimmune disorder with thyroid, graves, disease, and just worrying about all this it’s just like I’m wondering if I should just go on like algaecal or goat, milk powder or something more natural because I just feel like this is a money market like they’re making you take these injections. They get get money and parts out of it, but it really is not doing anything. People who’ve been on this injections and medication stuff have known to have more fractures, loose teeth, job pain, all kinds of dental problems. I mean all kinds and I’m just wondering if it’s even worth it is it better just to take proper calcium D3, and K2’s and stuff I don’t know what to do and I cannot take calcium bicarbonate because that causes kidney stones and I almost had kidney failure because of all my kidney stones. I haven’t had any in a long time and I don’t want anymore and I’m just trying to figure out what to do anybody have any help with natural stuff instead of injections that are actually working and I’m hearing too that the DEXA scans aren’t accurate either I don’t know what to think and I don’t know what to believe any input please thank you

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Profile picture for gently @gently

@vmcgrantham, endocrinologist and rheumatologists have specializations. Even though both disciplines treat osteoporosis, it is really difficult to stay on top of research and protocol for even one malady. Rheumatologists seem to specialize in autoimmune spectrums which is vast. Endocrinologists seem more vested in diabetes and thyroid disorders. Some few specialize in osteoporosis.
Your rheumatologist may feel a little put upon to handle osteoporosis. I see osteoporosis as primarily an endocrine disorder and would fall under the endocrinologist purview.
Forteo is definitely a money maker.
Forteo and Tymlos build the best most integrated most flexible--able to bear impact without fracture bone. Usually they are the most expensive osteoporosis medications, which is the reason why you can't get Forteo through the public health system unless you've had a fracture. And you can't get Tymlos In the [UK public healthcare system.}
Your endocrinologist might be happy to treat your osteoporosis. Maybe call the endocrinologist's office and ask staff if they treat osteoporosis.

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@gently E Do research on what came first the dexa or the drugs.

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Profile picture for sstopalian @sstopalian

OK, so maybe you need a consult and a change of medication...How is this a money maker??? If you don't have an endocrinologist you trust, think about changing.

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@sstopalian
All drugs are money makers...

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Profile picture for laren3 @laren3

@sstopalian
All drugs are money makers...

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@laren3 I just got my results back with my thyroid too. My thyroid are .12. It’s really off the wall so now my thyroid doctor my endocrinologist is testing my T4 and my calcium and seeing what’s going on this is just crazy. I never had this many problems with the jaw pain that I’m having and pains in the legs and arms just everything the headaches it’s just it’s not even worth it. I’m thinking I’m just gonna go back and do like algae cow and D3 and in K2‘s or maybe even goat milk powder with it. I hear they have better results so I think I’m off of this crap and I tried to talk to my rheumatoid doctor. She hasn’t even getting back to me. I don’t even know why she’s a doctor she doesn’t even read her messages or anything. It’s just frustrating around where I live. It’s just frustrating. You can’t find anybody good that knows what they’re talking about so I think I’m just gonna get off all of them. I’m just going natural stuff. I don’t care I’m 63 go on 64. I don’t care anymore.

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**Forteo isn’t just a money maker it’s an anabolic treatment that can build bone and reduce fractures while you’re on it, but it usually needs follow-up therapy to maintain gains, and since your ongoing flu-like symptoms, muscle aches, and jaw/teeth pain are not something to ignore (especially with your kidney history and Graves' disease), you should contact your doctor promptly to reassess, because “natural” options like calcium, D3, or K2 can support bone health but generally aren’t enough alone for high fracture risk, and a DEXA scan is still a useful though not perfect tool for guiding treatment decisions.

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With all your underlying conditions, maybe look into Raloxifene for a follow up drug to hold your gains? That is what I have done. I know Forteo saved my life after 13 successive compression fractures in my spine. I have not fractured in 10 years now. I recently went on a booster of Tereperatide (biosimilar Forteo) and will complete 24 months of it and follow up with Raloxifene again. I also have underlying conditions and drug sensitivity. Yes, the Forteo can make us not feel the greatest, but it does work, even if your density scores are not dramatically changed. I am a very active person and to me, the fact I have not fractured or lost any more height shows that. Research says the bone density is limited in showing complete bone healing results. I can no longer measure my spine, and bone density only can do my hip and thighbone, where as the majority of the work Forteo does is reportedly in the spine. Tia Chi has really helped with my body aches and stiffness and mobility. Stomach upset is on going, but worth it to me.
Wish you all the best, think positive and keep moving!

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Profile picture for dvargo @dvargo

@gently E Do research on what came first the dexa or the drugs.

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@dvargo, thanks. I'm familiar with the theories against dexa. But the most obvious fact is that osteoporosis came before the drug or the dexa. While many advances in science are made because of financial gain, it would be difficult to find one so closely connected to the promotion of a specific medication. Dexa remains, since 1993, the most widespread way for detection osteoporosis.
I feel a little conspiratorial myself speculating that maybe the reason there are so many fractures in women who are osteopenic is because they are on medictions that slow the acquisition of new bone.
I could wish we were all having high definition CT scans which could include the vulnerable thoracic spine, but the cost reduction of dexa has made earlier detection possible for the masses. Medicine operates under the rule of "economic feasibility." Motivations that include the desire to make a name for oneself or the desire to make money aren't sufficient to obliterate the good that has come from scientific advancement.
Dexa is certainly limited by its focus on density, margins of error, dependency on skilled technicians. Other than bone markers it is the only thing available to alert us to this fairly silent disorder. I wish dexas were ordered for every woman at least by 50 and every year after to stop this senseless devastation. How do you feel about REMS. I wonder if it will prove to be an advantage.

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Profile picture for gently @gently

@dvargo, thanks. I'm familiar with the theories against dexa. But the most obvious fact is that osteoporosis came before the drug or the dexa. While many advances in science are made because of financial gain, it would be difficult to find one so closely connected to the promotion of a specific medication. Dexa remains, since 1993, the most widespread way for detection osteoporosis.
I feel a little conspiratorial myself speculating that maybe the reason there are so many fractures in women who are osteopenic is because they are on medictions that slow the acquisition of new bone.
I could wish we were all having high definition CT scans which could include the vulnerable thoracic spine, but the cost reduction of dexa has made earlier detection possible for the masses. Medicine operates under the rule of "economic feasibility." Motivations that include the desire to make a name for oneself or the desire to make money aren't sufficient to obliterate the good that has come from scientific advancement.
Dexa is certainly limited by its focus on density, margins of error, dependency on skilled technicians. Other than bone markers it is the only thing available to alert us to this fairly silent disorder. I wish dexas were ordered for every woman at least by 50 and every year after to stop this senseless devastation. How do you feel about REMS. I wonder if it will prove to be an advantage.

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@gently Actually, Rems will be replacing Dexa in the future. More accurate.

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dvargo, are you familiar with https://link.springer.com/article/10.1007/s00198-025-07685-w and the very interesting response from ecolight.
It has the advantage of lower cost to get broader coverage by insurance.

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Profile picture for gently @gently

@vmcgrantham, endocrinologist and rheumatologists have specializations. Even though both disciplines treat osteoporosis, it is really difficult to stay on top of research and protocol for even one malady. Rheumatologists seem to specialize in autoimmune spectrums which is vast. Endocrinologists seem more vested in diabetes and thyroid disorders. Some few specialize in osteoporosis.
Your rheumatologist may feel a little put upon to handle osteoporosis. I see osteoporosis as primarily an endocrine disorder and would fall under the endocrinologist purview.
Forteo is definitely a money maker.
Forteo and Tymlos build the best most integrated most flexible--able to bear impact without fracture bone. Usually they are the most expensive osteoporosis medications, which is the reason why you can't get Forteo through the public health system unless you've had a fracture. And you can't get Tymlos In the [UK public healthcare system.}
Your endocrinologist might be happy to treat your osteoporosis. Maybe call the endocrinologist's office and ask staff if they treat osteoporosis.

Jump to this post

@gently the rheumatologist wants to put me on Reclast but that’s harder on the kidneys and higher risk of jaw neurcrosis. I do have two teeth implants and can cause problems. I feel like a mess because of all this. The forteo is the safe test but the joint pain tiredness, headaches and hurt so much. But off I go to Reclast that’s harder on the kidneys and jaw. You can’t get a medium ground but even if i stick with the forteo what do I take next .

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