Parotid gland tumor. Will need surgery. Your experience at Mayo?

Posted by tinytoni @tinytoni, Jan 15, 2024

I have just been diagnosed with a tumor in my Parotid salivary gland. Had the ultra sound and the MRI. Waiting for my fine needle biopsy results this week. Need a doctor who is an expert in this type of surgery. Anyone able to suggest one in Rochester. I will be traveling from Michigan. Any info will help. Thanks!

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

I'm taking Chemo instead of the risk of hitting a nerve anywhere in your face area - very risky too me!
I did the biospy, everything was ok and fast = all NHL B cell cancer. I'm losing some of my teeth due to this tumor. good luck to all cancer patients and surviors!!!!

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My team there was dr eric Moore surgery and Dr daniel ma radiation oncologist
Excellent treatment and reconstruction (I lost my facial nerve)

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Profile picture for mrjcs @mrjcs

I'm taking Chemo instead of the risk of hitting a nerve anywhere in your face area - very risky too me!
I did the biospy, everything was ok and fast = all NHL B cell cancer. I'm losing some of my teeth due to this tumor. good luck to all cancer patients and surviors!!!!

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@mrjcs, welcome. Dental issues are often discussed in the forum. See these related discussions: https://connect.mayoclinic.org/group/head-neck-cancer/

Did you also have radiation?

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Sorry I have been MIA for so long. We have been waiting for the results from her PET scan from last Thursday & let’s just say I’m exhausted from all the worrying.
Dr. told us today that he is 99% sure from scan that the “hot spot” or cancer in her lymph node is coming from her left tonsil. Slight activity on right side. All other major organs were all clear til we got down to the lower bowel. He says that spot is totally unrelated to the tonsil area. We have sat up surgery to remove tonsils & possibly adenoids next Wednesday. From my understanding they will biopsy that to see if it tests positive or negative for something 🤷‍♀️ can’t remember but that will tell them what kind or how much radiation or chemo will actually be needed. We have also sat up an appointment for her to have a colonoscopy & I reckon they will biopsy that spot & go from there with more fear & anxiety. I’m trying to educate myself as much as possible because I know I sound so ignorant but apart from selling my soul for my Momma & to be honest I’ve thought about it 🥹 I’ll do anything for her. I’m praying so hard that this early detection & treatment will keep her around for a very long time. Today’s appointment was the hardest one I’ve ever had to walk into. My whole body was on fire, ears ringing & legs jelly. All I could think of was is this man gonna tell me I’ll not have my Momma much longer & just how I was gonna handle that. So thankful to God that I did not hear that today. I know you guys don’t know me from anyone but I can not tell you how much it means to have you in my life right now & I appreciate all the helpful wonderful comments. All the support & prayers. Much love to you all. So far I’m trusting what the local Dr is saying but after reading some comments I’m wondering if a second opinion is needed & how a person goes about doing that?! What are y’all’s thoughts & opinions?! Let them remove tonsils & start on radiation?! Or go somewhere else & see what they say?!

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