ERM procesure in 3 days and my anxiety is building
I have a epiretinal membrane condition and am scheduled to have a vitrectomy in 3 days, and my anxiety is off the chart.
It's 4am and I can't sleep.
Originally I had a very mild ERM, my retina specialist said I have it but it's not enough to bother my eye sight but if I start to see wavy and blurry lines that may be time to discuss treatment.
I then had a cataract lens replacement. Left eye went fine, saw 20/20 the next day, but when when my right eye got operated, the vision was blurry the next day, the next week, the next month (and more blurry than pre-cataract surgery) so the cataract surgeon said there is something going on with my retina and to return to the retina specialist. The retina specialist said there is significant inflammation on my retina post cataract surgery...did eye drops, tried different eye drops over the course of several months. prednisolone, ketorolac, bromfenac, difluprednate, no improvement whatsoever, progressed to injection of Triamcinolone (3X over a six week period), no improvement, progressed to injection of Avastin (3X over 3 months), also no improvement, so advised to do a vitretomy for a "membrane peel".
Initially I wasn't very nervous because doctor said it's a common procedure and I should see improvement afterwards but could take some time, and was told no need to do the post-op face down. I was also told if I do not operate, and operate soon, I will lose my central vision.
Nonetheless, I went to see another retina specialist for a second opinion, and the second retina specialist said if every thing has been tried surgery is my only option but comes with risks. He said the inflammation that caused the irregular retina surface is what is causing my blurry vision, but this inflammation can't settle back most likely because the EPM scar tissues are keeping the inflammation from settling back, however, sometimes the inflammation may be caused by blood vessel hemorrhage so he did an angiogram of my eye to confirm I don't have any issue, but he did ask if I did an angiogram before and I said no, he commented "very interesting..." That makes me wonder my my first retina specialist didn't do one, but when I asked if he would consider operating, he said my first retina specialist is fine and he would not hesitate to have him do the operation.
So now I am having this procedure in 3 days and I can't sleep.
I asked the retina specialist to confirm there is no need to do the face down since I may have to get a special table for it right? He said no need unless there are complications.
I asked if there are medications like pain killers or drops I need post-op and he said he will tell me on the post op appointment the day after. If there is pain just take Tylenol.
Sorry for the long rant, but I do have some specific questions for those who have been through this procedure. I guess I am especially nervous because this condition came as a by product of the cataract surgery, so it has been one problem after another for me.
(1) Since the procedure involves multiple holes being open into the eye to extract the vitreous fluid and to do the membrane peel, these holes would not automatically seal up afterwards right? So once the procedure is done, a replacement fluid is added into the cavity, wouldn't the fluid leak out of the open holes? Or are the holes stitched up afterwards?
(2) This fluid that is filling the eye, is this fluid a permanent replacement? I read that it replaces the natural fluid permanently, but I also read that the eye will gradually replace it with natural fluid over time? Which is it?
(3) I was told I will have local anesthesia and will stay awake during the procedure, so if I am awake during this procedure, am I going to be conscious enough to speak to the doctor during the procedure? What if I feel an itch behind the ear that is extremely uncomfortable? What if I suddenly have an urge to sneeze or cough? I can't imagine that would be a good thing with such a precision procedure?
(4) Yesterday I had to remove a poster from the wall attached with double sided tape. I had trouble getting it off as I pulled it off the paint came with it. I immediately thought about this procedure of peeling the membrane scar tissue. What if there is no "edge" to grab the membrane to peel? What if when peeling it, the retina detaches at the same time? What if when peeling it, the optic nerves get pulled with it?
(5) My procedure is at 1PM, I was told no food or drink for 8 hours prior. That means no food after 5AM. No breakfast or lunch. Can I at least drink water after 5AM.
I will try to go back to sleep now and see what happens.
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I’m sorry you have to go through this procedure and are having issues. I have ERM in one eye and hope to never get to where you’re at. You’re in my prayers for a successful procedure and peace of mind. ❤️