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Moderator

Hearing Loss: Come introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Feb 5, 2019

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

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robertyu | @robertyu | Apr 25 9:19am

some local Universities have an Audio department and are a good place to check out; backup by the university, their usual better trained with the latest equipment; however, they’re usually connected to selected Hearing Aid companies, so you may want to check out who is they’re Hearing Aid company

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lyndakr | @lyndakr | Apr 25 3:42pm

Thanks for suggestion. Yes, an audiologist to help me adjust the blue tooth

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Julie, Volunteer Mentor | @julieo4 | Apr 26 10:16pm
In reply to @lyndakr "good Morning. Lynda here. I have a severe hearing loss caused by hereditary Otosclerosis. In the..." + (show)
Profile picture for lyndakr @lyndakr

good Morning. Lynda here. I have a severe hearing loss caused by hereditary Otosclerosis. In the 50 years since diagnosis I have had surgery on both ears with hearing restored for 15 years then wearing hearing aids thereafter. I bought Signia Horizon IX aids about 9 months ago over the counter because they were supposedly the latest and greatest and gave me Bluetooth. BIG MISTAKE. At age 85 I have Essential Tremor, hands shaking so badly I can’t even write a check. So changing the Wax Guards on the In the Canal aids is almost impossible for me. So I didn’t. The In the Canal amplifier filled with wax and stopped working resulting in an $85 per ear charge to replace. I have gone back to my old Phonak Behind the Ear aids, but my hearing in church, restaurants and theaters is really poor. About 50%. since these were an OTC purchase there is no Audiologist to help me.

Any suggestions ???

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@lyndakr You say you have gone back to your old Phonak BTE hearing aids. Are they working OK for you? Do they have the telecoil option? Most Phonak models have had that feature. They also had assistive technology that worked with them. Phonak, I believe, was one of the first to create and promote hand held microphones. Phonak's Roger Pen worked very well. Worship centers and many public venues have hearing assistive technology installed that those telecoil equipped aids can work with. An audiologist should be able to help you with this. It doesn't require a lot of dexterity so might work for you.

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bailey1 | @bailey1 | Apr 27 6:44am

I have MAC pulmonary disease
Taking azithromycin, ethambutol and rifampin.
I already have a moderate sensory neural hearing loss and it is getting worse from the drug drugs.
They want me to start inhaled amikacin next week.
Anyone know where I can get a rapid MT-RNR1 test soon.
I have not had success, but I do have a script from ENT. I live in New Jersey.

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ajhiller | @ajhiller | Apr 27 2:27pm

Hello, I’m Amy and am new to the forum! I have single sided deafness, which came on suddenly in June of 2025 due to a Vestibular Schwannoma (acoustic neuroma). I went through Gamma Knife last September, at the Mayo Clinic in Rochester.
I have zero word recognition in my right ear, but can hear tones. If it gets too loud, it sounds like a kazoo in my ear.
Has anyone had luck with a hearing aid for this type of hearing loss?

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cleveland26 | @cleveland26 | Apr 27 9:02pm
In reply to @ajhiller "Hello, I’m Amy and am new to the forum! I have single sided deafness, which came..." + (show)
Profile picture for ajhiller @ajhiller

Hello, I’m Amy and am new to the forum! I have single sided deafness, which came on suddenly in June of 2025 due to a Vestibular Schwannoma (acoustic neuroma). I went through Gamma Knife last September, at the Mayo Clinic in Rochester.
I have zero word recognition in my right ear, but can hear tones. If it gets too loud, it sounds like a kazoo in my ear.
Has anyone had luck with a hearing aid for this type of hearing loss?

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@ajhiller I don't know the answer to your question but I do recommend an excellent source of information: Hearing Tracker Forum. There are many knowledgeable contributors to that forum who may be able to offer you and answer. I wish you the best.

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