@gangcarotid1
I thank you so much for telling it like it is, not sugar coating anything, it worries me but if it helps outcome later, I can imagine more horrific dental procedures that Ive been through. I worry though that i might cough because I have bronchiectasis and anyone that has this knows in a cold environment its like eating ice cream too fast and having to cough and drowning in your own mucous if you lay down flat. How is this supposed to go for me? I dont know Im very scared about this more than the procedure, but I do know the risks. I assume I will have to do the cerebroangiogram and the embolization to prevent stroke and or bleeding out. Ive had the skull base tumor since 2012 and the carotid body appeared last year fast. what is your swallowing function like and have any of your symptoms that the CBT gave you subsided at all? Thank you for your feedback.
@taracronwall
Each case is different; some drs want the embolization done the day before the CBTresection so as to reroute the blood supply away from the tumor, yet make sure any blood flow diversion doesn't affect brain. I would tell them about your concerns of choking on mucus; they can make a Plan for that, Im confident. IF they decide to do the embolization for the CBT.
The feeling of a wad of gauze stuck in my throat is still there. My numbness from jawline, down the side of my neck and halfway up my ear, is tingly numb but not painful and no muscle problems. I am beginning to wonder if the gagging gauze feeling might be not getting better due to all the nodules on my thyroid...I kinda think of my neck area as a 2 lane highway, with all the traffic that passes through it being what would normally be an 8 lane higheay... lotsa nerves, arteries, vessels, glands, etc., in a very small space, touching each other, irritating each other if they're swollen or growing. The thyroid nodule they biopsied this last time, was benign. But I have lots of them so they will be checking them annually.
@gangcarotid1
wow! amazing you had it resected was it a carotid body tumor? I have a carotid body tumor on left neck but stemmed from a parapharangeal skull base gangioma. I also have a lump in my right neck which was called a 2B lymph node on scans but it was written off by my radiation oncologist at Mofftt as a salivary gland, blahblah, its not her neck. Its gotten bigger from mm to cm's and my oncologist at Florida Cancer said not right and I should be watching all of my thyroid nodules because they are growing. Im not sure what Shamblin class I'd be but Im thinking at least a III because it bifiurcates the carotid and the jugular and it stems from the skull base which I understand can make it difficult and put you at risk for strokes and hemmorhage unless the tumor is embolized first which is I guess how they establish if they will embolize or not, wonder about a cerebroangiogram first to determine what ischemic changes have happened in the brain as mine have shown to have many changes. I hope Dr Hinni Can get the tumor removed and get some in the skyll base without moving my mandible and also get the suspicous other tumor(which could be a billateral carotid one as 30%of people that have them have them on both sides) and if there is little collateral damage Id be a happy camper to not have to worry about these every day of my life. Also those that have had surgery have your symptoms subsided at all??? Mine are tipping over hitting my head a lot, migraines, heartbeats in my ear, swooshing, painful tinnitis swelling throbbing diffficulty swallowing and choking on food, numbness in my left arm and 3 last fingers my concentration is for shit and my memory is going and its enough to make me a little battty as these symptoms some come and go and people say "oh you look fine like nothing is wrong with you!" :{
@taracronwall
Thyroid is what controls your mood, and can be a instigator of depression, worry, anxiety, irritability. At my recent annual physical I discussed this w my PCP...it was difficult; I cried...but I had my husband sitting w me for moral support. My dr upped my anti-depressant. That was 9 days ago. Not sure if its made a difference yet, but I haven't been as irritable. And Im sleeping better; not waking up with a billion what-if's thundering through my mind.
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@taracronwall
Each case is different; some drs want the embolization done the day before the CBTresection so as to reroute the blood supply away from the tumor, yet make sure any blood flow diversion doesn't affect brain. I would tell them about your concerns of choking on mucus; they can make a Plan for that, Im confident. IF they decide to do the embolization for the CBT.
The feeling of a wad of gauze stuck in my throat is still there. My numbness from jawline, down the side of my neck and halfway up my ear, is tingly numb but not painful and no muscle problems. I am beginning to wonder if the gagging gauze feeling might be not getting better due to all the nodules on my thyroid...I kinda think of my neck area as a 2 lane highway, with all the traffic that passes through it being what would normally be an 8 lane higheay... lotsa nerves, arteries, vessels, glands, etc., in a very small space, touching each other, irritating each other if they're swollen or growing. The thyroid nodule they biopsied this last time, was benign. But I have lots of them so they will be checking them annually.
@taracronwall
Thyroid is what controls your mood, and can be a instigator of depression, worry, anxiety, irritability. At my recent annual physical I discussed this w my PCP...it was difficult; I cried...but I had my husband sitting w me for moral support. My dr upped my anti-depressant. That was 9 days ago. Not sure if its made a difference yet, but I haven't been as irritable. And Im sleeping better; not waking up with a billion what-if's thundering through my mind.