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Neuroendocrine Tumors (NETs) | Last Active: Jul 25 3:44pm | Replies (54)
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@tomrennie
In addition to the angiogram, I've had MRI of each tumor and a PET scan. I've submitted various laboratory samples. My next step is to meet with OTO doc and then back to Brain Center at MD Anderson in Houston where I reside. Another MRI has been scheduled. Right now the plan is mostly testing and wait/see if paragangliom grows or changes. All the best to you!
Replies to "@tomrennie In addition to the angiogram, I've had MRI of each tumor and a PET scan...."
@jeanwil
Hello, checking in to see how you and fellow Paragangliomas are
doing? It’s mid July and have another follow up appt at MDA Houston in one week. Tram has been actively watching since last Dec. Just finished my last radiation treatment after recent breast cancer surgery. Prayers for you all! Thanks, Suzanne
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@jeanwil The process continues for you. It is great to have a plan. What is an OTO doc? I have never heard of that acronym before. Thanks.