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Neuroendocrine Tumors (NETs) | Last Active: Jul 25 3:44pm | Replies (54)
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@jeanwil So the diagnosis kind of came out of nowhere? That can be a lot to process. How are you doing overall? Do you have any more tests to do? What do your next steps look like?
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@tomrennie
In addition to the angiogram, I've had MRI of each tumor and a PET scan. I've submitted various laboratory samples. My next step is to meet with OTO doc and then back to Brain Center at MD Anderson in Houston where I reside. Another MRI has been scheduled. Right now the plan is mostly testing and wait/see if paragangliom grows or changes. All the best to you!