Anyone partaking in this clinical trial for low dose Tam?

I started the discussion because my onco doc suggested that I would be a good candidate for the low Tam trial due to my type of BC cancer and I wanted to know how someone on this drug at the lower dose was tolerating it however, after signing up for the trial, I was not chosen for the group to take 5mg of Tamoxifen but chosen for the other group which is a normal dose of an AI. After reading through a lot of the comments here on this forum, I opted not to participate and dropped out of the trial. I was willing to try the 5mg of Tam but not a higher dose of another drug. I even asked my doc do I have to participate in the clinical trial to get 5mg of Tam and the answer was "YES", which I found concerning. What drove home my decision not to take any drugs at this time were 2 comments the doc said to me and those were "well, you also have to consider your quality of life in making a decision" and "the drugs are to reduce distant recurrence". "Distant" recurrence I wondered? I'm 68 years old. So if taking an AI is only reducing recurrence later in my life and at a very small percentage, I'd rather enjoy the time I have left and not have to constantly battle with side effects of the drug, even if they are mild. What is most frustrating to me about BC treatment is after all these years and tons of money thrown at research, this is the best you got for us??? I am on the prowl now to seek out a 2nd opinion for my treatment, if any, however, I am not holding my breath that much will change. I will continue to maintain a healthy diet, stay active and get plenty of sleep in hopes that my cancer doesn't return. That's the best choice I think I have made for myself right now going forward.

I started the discussion because my onco doc suggested that I would be a good candidate for the low Tam trial due to my type of BC cancer and I wanted to know how someone on this drug at the lower dose was tolerating it however, after signing up for the trial, I was not chosen for the group to take 5mg of Tamoxifen but chosen for the other group which is a normal dose of an AI. After reading through a lot of the comments here on this forum, I opted not to participate and dropped out of the trial. I was willing to try the 5mg of Tam but not a higher dose of another drug. I even asked my doc do I have to participate in the clinical trial to get 5mg of Tam and the answer was "YES", which I found concerning. What drove home my decision not to take any drugs at this time were 2 comments the doc said to me and those were "well, you also have to consider your quality of life in making a decision" and "the drugs are to reduce distant recurrence". "Distant" recurrence I wondered? I'm 68 years old. So if taking an AI is only reducing recurrence later in my life and at a very small percentage, I'd rather enjoy the time I have left and not have to constantly battle with side effects of the drug, even if they are mild. What is most frustrating to me about BC treatment is after all these years and tons of money thrown at research, this is the best you got for us??? I am on the prowl now to seek out a 2nd opinion for my treatment, if any, however, I am not holding my breath that much will change. I will continue to maintain a healthy diet, stay active and get plenty of sleep in hopes that my cancer doesn't return. That's the best choice I think I have made for myself right now going forward.

@whitehairwisdom I am also 68 and have been on Letrozole for 2 years and I was having bone pain, and terrible dry eye, and I went to the oncologist today and I just said 5 mg of Tam or nothing. She tried to talk me out of it but I insisted on it. I am with you after all these years of research on breast cancer this is all they can do for us? I was supposed to be on Letrozole for another 8 years! I would have no bones or eyes left!!

Is low-dose Tamoxifen considered to be 10 mg or 5 mg? Just curious. I currently take 10 mg. Started Jan 1st & doing ok but I feel a little tired & have some mild headaches. Hoping the side effects go away as my body adjusts.

@whitehairwisdom I am also 68 and have been on Letrozole for 2 years and I was having bone pain, and terrible dry eye, and I went to the oncologist today and I just said 5 mg of Tam or nothing. She tried to talk me out of it but I insisted on it. I am with you after all these years of research on breast cancer this is all they can do for us? I was supposed to be on Letrozole for another 8 years! I would have no bones or eyes left!!

@carolsue1234 I asked my Doc to prescribe the 20 mg Tamoxifen she wants me on, but get it in 10 mg. pills. She knew I was wanting to do the ten, which I did for 3 weeks. Then because of headaches & lots of joint pain I decided to reduce to 5 mg. She would NOT even answer my written request for 10 mg. tabs. She does not want me on 5mg saying it's not effective. It seems she views patients as not having a say in their dosage. I'm going to make a change.

@carolsue1234 I am 72 & talked my oncologist into prescribing 10 mg of Tam instead of the usual 20. I'm doing ok with the 10.