Anyone else have multiple autoimmune diseases?

Posted by noelcs @noelcs, Sep 28, 2025

I have Addisons, Hypothyroidism, Sarcoidosis, Myasthenia Gravis and Dermatomyositis. Also, Kidney disease 3a, and liver disease. Good news is……I don’t seem to have the worst. Are scenario of any of them. My biggest problem is the lungs. I still golf some and the breathing sometimes interferes. Overall, I consider myself lucky that I’m still here……because I’ve had some close calls.

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jhhuis | @jhhuis | 12 hours ago

In reply to @77smith77 "I have Myasthenia gravis, Churg-Strauss Syndrome, and Pachymeningitis. 80 y/o. Treated by 17 specialties. Drove one..." + (show)

@77smith77 My wife has had MG symptoms for years, breathing and swallowing issues. Diagnosed last Sept, but not medicated well, plasma exchange lately shows improvement. Vyvgart is considered an option and you are identified as experienced in MG management. What do you think of Vyvgart if you used it? jhh

swalex | @swalex | 10 hours ago

In reply to @jhhuis "@77smith77 My wife has had MG symptoms for years, breathing and swallowing issues. Diagnosed last Sept,..." + (show)

@77smith77
Would your wife consider seeing a doctor at the Mayo Clinic?
https://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/symptoms-causes/syc-20352036

swalex | @swalex | 10 hours ago

@noelcs,
You are lucky.
I also have Addison’s disease, hypothyroidism, kidney disease, antiphospholipid syndrome (APS)/lupus, von Willebrand disease type 2, and a Factor V Leiden mutation.
I’ve come close to an Addisonian crisis twice, but fortunately, I had my emergency kit with me both times.

synthiaMaine | @synthiame | 9 hours ago

Tried coming today Yes, I have Hashimoto's, and we taught arthritis and Sjogren's disease

westwoman3698 | @westwoman3698 | 8 hours ago

I have MS, sarcoidosis in left eye and right lung, Hep C, and other stuff. Have tried to cut down on Doc visits because they continue to add disease after disease. Probably not smart on my part but it’s an act of mental health preservation.

h16027 | @h16027 | 7 hours ago

In reply to @htolan "@noelcs My nodules are from bronchiectasis and they are starting to make headway with it. Things..." + (show)

@htolan Hi! When u say, "They are starting to make headway with it," what are they doing to help it? I struggle with Bronchiectasis & am concerned about permanent damage. Sjogren's Dysautonomia MCA (several autoimmunediseases). I appreciate anything u can share. It's hard but it certainly helps to know God. Hope things do get better with u.

noelcs | @noelcs | 6 hours ago

In reply to @corinnee "Raynaud's, Limited Scleroderma, Mixed Connective Tissue Disease, Lupus, and Fibromyalgia. On top of that, Chronic Kidney..." + (show)

@corinnee I’m very interested about your diet changes that improved your GFR. I have stage 3b and my scores are always 39 and lower.

Sue Noel

htolan | @htolan | 4 hours ago

In reply to @h16027 "@htolan Hi! When u say, "They are starting to make headway with it," what are they..." + (show)

@h16027 Which of my many diseases was I talking about?

h16027 | @h16027 | 1 hour ago

In reply to @htolan "@h16027 Which of my many diseases was I talking about?" + (show)

@htolan Sorry I wasn't clear & maybe I misunderstood... You were speaking of having Bronchiectasis & how they were making headway with it... I have Bronchiectasis also & are very interested in what they are doing to possibly improve things for you. Any information would be helpful. Thanks.

h16027 | @h16027 | 1 hour ago

In reply to @westwoman3698 "I have MS, sarcoidosis in left eye and right lung, Hep C, and other stuff. Have..." + (show)

@westwoman3698 I totally understand... sometimes there is only so much a body can handle, mentally.

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