COVID Post-Vaccine Syndrome -- Looking for a doctor who treats this
I have COVID Post-Vaccine Syndrome and am very grateful that this is finally being talked about.
But I have no idea how to find a doctor who is knowledgeable about this condition and is taking new patients.
Any suggestions?
Or if there are any clinical trials available to apply to - to be included in.
Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.
Connect

@meshmash
I am a firm believer that that's probably a thing, but also know of a situation where a husband and wife both had covid at the same time, and he tested positive for covid and she never did. And I read somewhere that just because you don't think you had the virus, doesn't necessarily mean you didn't pick it up and retain it in your system without symptoms, but I do think a great many people suffered illness from the vaccine itself.
I was going to a doctor in NC because I had retained gadolinium from a contrast dye in my system, and he told me not to get the vaccine because my immune system was already compromised from the contrast dye , and that the vaccine itself compromises immune systems.
So, I never got the vaccine, but did have the virus one time and tested positive for it.
Scientists are engaged. Your Long Covid has a name in the medical journals: ‘post-acute covid-19 vaccination syndrome’ (PACVS). I've attached a science based detailed web page. It does help to download the PDF file and take it with you on all doctor appt. related to your PACVS. There are doctors who will a.) Review the facts of what the covid vaccines did to humans; and, b.) help you find solutions that will deal with the maltase that don't cause further deterioration. Take this to your local physician and asked them to 'engage' as you may be pleasantly surprised that your small town doctor may be the one you've been looking for, they just need a nudge! https://www.sciencedirect.com/science/article/pii/S240584402501864X
Back in 2024 the National Institute for Health, a US Gov Agency 'engaged' in a public way. They have labeled all these symptoms of Long Covid: The Post-Acute COVID-19-Vaccination Syndrome in the Light of Pharmacovigilance. What an appropriate label and a calling out of Covid vaccine connections since Pharmacovigilance means: 1. The detection, assessment, understanding and prevention of adverse effects of medicines. While it is harder to get doctors to read this report, it is worth reading to get correctly diagnosed and to change the way insurance providers think on the matter of Long Covid coverage: https://pmc.ncbi.nlm.nih.gov/articles/PMC11680367/
I gathered a lot of my research from LDN Research Trust in searching for help and there are 4 guides for 2026 that they have listed that may be helpful, and it was suggested that I share with the specific groups to which they may apply and help.
LDN 2026 patient guide (LDN-2026-patient-guide-1.pdf)
LDN 2026_Prescriber_Guide (LDN-2026_Prescriber_Guide-1.pdf)
LDN 2026_Mental_Health_Guide (LDN-2026_Mental_Health_Guide-1.pdf)
LDN 2026_Dosing_Guide (LDN-2026_Dosing_Guide-1.pdf)
@hockeemom
I used LDN for issues I retained following a procedure with a contrast dye, and then issues I retained following covid, and it has done so much good for me! I take it at night time, and wake up feeling amazing. I no longer have the shortness of breath, sinus issues, metabolic issues, aches and pain in muscles and joints, no more dizziness, the list goes on.
Maybe these guides will provide some information that speaks to you and may possibly help.
LDN 2026 patient guide (LDN-2026-patient-guide-2.pdf)
LDN 2026_Prescriber_Guide (LDN-2026_Prescriber_Guide-2.pdf)
LDN 2026_Mental_Health_Guide (LDN-2026_Mental_Health_Guide-2.pdf)
LDN 2026_Dosing_Guide (LDN-2026_Dosing_Guide-2.pdf)
@meshmash
Hi, wanted to share some LDN guides with you that I found when researching LDN for several issues; maybe if you look over them; you might find helpful information.
LDN 2026 patient guide (LDN-2026-patient-guide-3.pdf)
LDN 2026_Prescriber_Guide (LDN-2026_Prescriber_Guide-3.pdf)
LDN 2026_Dosing_Guide (LDN-2026_Dosing_Guide-3.pdf)
LDN 2026_Mental_Health_Guide (LDN-2026_Mental_Health_Guide-3.pdf)