COVID Post-Vaccine Syndrome -- Looking for a doctor who treats this

@lesligirl02
I have never had Covid (been tested several times), which is the main reason I know I have Post-Vaccine Syndrome. And the symptoms started soon after receiving the vaccine.

I have had Covid 3 times. I have taken all vaccines offered. My last virus was June 2023. Went on vacation (motorhome) July 23. Do not remember leaving home (SW FL). Arrived in Alabama totally unresponsive. Husband got me to the nearest hospital where I spent 5 day in ICU with total system failure. I had no idea where I was. Could not stand. They were testing everything to try to diagnose me. I was 15 minutes away from getting dialysis but thankfully the Lab results came back improved. I had pneumonia (?related to Covid) so the best DX they came up with was pneumonia=respiratory failure = cardiac failure=MI, A-Fib, runs of V-Tach, Tachycardia etc, Liver Failure, Renal Failure, lack of oxygen to my brain = confusion, brain fog, and low GCS (Glasgow Coma Scale). I lost nearly all of muscle tone.
Now I fall all the time, continue with brain fog, incontinent at night, almost daily headaches, ringing in my ears, FATIGUE, on home oxygen cannot walk very far without EXTREME shortness of breath. I now have nodules in my lungs Pulmonologist orders CT every 6 months to “watch” them. Horrible depression R/T my health. Pulmonologist “poo-poos” LT Covid. Not sure where to go from here.
The ER doc told my husband I would have been dead in another hour. Oh, yes, I deal with so much joint pain and tendon issues. I use a walker as I fall literally all the time. I have balance and dizziness issues now.

I’m going to give this clinic a try and I will update when I can 🙏🙏

@lesligirl02
I have never had Covid (been tested several times), which is the main reason I know I have Post-Vaccine Syndrome. And the symptoms started soon after receiving the vaccine.

There is a Dr Jordan Vaughn here in Alabama. Look up his name/read up on his studies and what he submitted to the "Senate Subcomittee on Investigation"-very interesting read. He USE to focus on chronic illness being an internist but since "long covid" he has turned his focus on long covid and vaccine injury. My daughter did talk to someone from his office and they required $1700 up front BEFORE an appt would be made. They do extensive bloodwork- micro-clotting etc. They will submit just the bloodwork to insurance. She would be seen 1x per month for I think it was 6 months ($1700) not sure about the cost of additional testing. I have read up reviews/comments and torn if it would be worth for us to try him. He is extremely busy and 6-9mths or more out to see him. Some reviews mention they ended up having pay 2-3k after the 6 months of his plan.

My daughter is 26 yrs, was diagnosed of Dysautonomia when she was 16yrs at a center/tilt table but she had heart palpitation around 7yrs old. We have been riding a roller coaster of Drs/specialist. She has new issues this past year. We had spent thousands of $$$$$ over the last few years trying to find any help or additional diagnosis. She has seen a holistic practice...gave her tons of supplements but never had answers for any of her results (recent 25-26yrs). She saw a Chiropractic Neurologist but he didn't take insurance but he tried very hard to give her relief (she was in her teens), During Covid (where places wouldn't see you in person) she did an facetime "care" for 4 weeks with Dysautonomia Center in TX. She had to take off of work for 2 weeks to write down everything/monitoring every food/drink/bowels. TOTAL WASTE OF $$$$$. We feel this would of been a different situation if she was actually in the center for the 2 weeks (again they wouldn't see anyone during covid). She sees a neurologist, cardiologist, endocrinologist -who has said she doesn't know enough info to give any guidance.

I am now researching Vanderbilt Dysfunction Center, Mayo Clinics and Dr Vaugh.

I would love to know if you find any additional/helpful information. This illness is debilitating and so hard to watch our young daughter suffer for so long and then new things pop up in her health. I just keep praying.

Wish you well in your search and finding relief.

I have had Covid 3 times. I have taken all vaccines offered. My last virus was June 2023. Went on vacation (motorhome) July 23. Do not remember leaving home (SW FL). Arrived in Alabama totally unresponsive. Husband got me to the nearest hospital where I spent 5 day in ICU with total system failure. I had no idea where I was. Could not stand. They were testing everything to try to diagnose me. I was 15 minutes away from getting dialysis but thankfully the Lab results came back improved. I had pneumonia (?related to Covid) so the best DX they came up with was pneumonia=respiratory failure = cardiac failure=MI, A-Fib, runs of V-Tach, Tachycardia etc, Liver Failure, Renal Failure, lack of oxygen to my brain = confusion, brain fog, and low GCS (Glasgow Coma Scale). I lost nearly all of muscle tone.
Now I fall all the time, continue with brain fog, incontinent at night, almost daily headaches, ringing in my ears, FATIGUE, on home oxygen cannot walk very far without EXTREME shortness of breath. I now have nodules in my lungs Pulmonologist orders CT every 6 months to “watch” them. Horrible depression R/T my health. Pulmonologist “poo-poos” LT Covid. Not sure where to go from here.
The ER doc told my husband I would have been dead in another hour. Oh, yes, I deal with so much joint pain and tendon issues. I use a walker as I fall literally all the time. I have balance and dizziness issues now.

I’m going to give this clinic a try and I will update when I can 🙏🙏

There is a Dr Jordan Vaughn here in Alabama. Look up his name/read up on his studies and what he submitted to the "Senate Subcomittee on Investigation"-very interesting read. He USE to focus on chronic illness being an internist but since "long covid" he has turned his focus on long covid and vaccine injury. My daughter did talk to someone from his office and they required $1700 up front BEFORE an appt would be made. They do extensive bloodwork- micro-clotting etc. They will submit just the bloodwork to insurance. She would be seen 1x per month for I think it was 6 months ($1700) not sure about the cost of additional testing. I have read up reviews/comments and torn if it would be worth for us to try him. He is extremely busy and 6-9mths or more out to see him. Some reviews mention they ended up having pay 2-3k after the 6 months of his plan.

My daughter is 26 yrs, was diagnosed of Dysautonomia when she was 16yrs at a center/tilt table but she had heart palpitation around 7yrs old. We have been riding a roller coaster of Drs/specialist. She has new issues this past year. We had spent thousands of $$$$$ over the last few years trying to find any help or additional diagnosis. She has seen a holistic practice...gave her tons of supplements but never had answers for any of her results (recent 25-26yrs). She saw a Chiropractic Neurologist but he didn't take insurance but he tried very hard to give her relief (she was in her teens), During Covid (where places wouldn't see you in person) she did an facetime "care" for 4 weeks with Dysautonomia Center in TX. She had to take off of work for 2 weeks to write down everything/monitoring every food/drink/bowels. TOTAL WASTE OF $$$$$. We feel this would of been a different situation if she was actually in the center for the 2 weeks (again they wouldn't see anyone during covid). She sees a neurologist, cardiologist, endocrinologist -who has said she doesn't know enough info to give any guidance.

I am now researching Vanderbilt Dysfunction Center, Mayo Clinics and Dr Vaugh.

I would love to know if you find any additional/helpful information. This illness is debilitating and so hard to watch our young daughter suffer for so long and then new things pop up in her health. I just keep praying.

Wish you well in your search and finding relief.

@kris1130 I share your frustration and offer something for you to consider. I chased the Long COVID/Vaccine Injury rabbit for about 3 years (beginning November 2021, first and last vaccine booster) until I found a Doctor on my own (all the local Doctors including Mayo Clinic Rochester testing came back normal). After treatment by Dr. Bruce Patterson (I had considered Dr. Vaughn), and no improvement after test 2, Dr. Patterson said hmmmm, we should test you for Lyme and Mold Illness. I tested positive for Mold (Mycotoxins). Turns out there are many crossover symptoms which confuses medical professionals (if they even think of testing for Mold Illness). At about 5 months (and 4-1/2 years after symptom onset) on the Mold Illness regimen, my health is returning, I can exercise, my brain fog is gone, and I feel like doing things again (in reflection the most damning symptom is 'amotivation' - not wanting to do a damn thing about anything. Mold Illness even exists in dry climates like Arizona and its usually caused my mold exposure in your home (its that old house smell). Take a moment and watch a YouTube video by Dr. Andrew Campbell and see what you think. Best wishes on your journey.