COVID Post-Vaccine Syndrome -- Looking for a doctor who treats this

Posted by meshmash @meshmash, 4 days ago

I have COVID Post-Vaccine Syndrome and am very grateful that this is finally being talked about.
But I have no idea how to find a doctor who is knowledgeable about this condition and is taking new patients.
Any suggestions?
Or if there are any clinical trials available to apply to - to be included in.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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@lesligirl02
I have never had Covid (been tested several times), which is the main reason I know I have Post-Vaccine Syndrome. And the symptoms started soon after receiving the vaccine.

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@meshmash

I am a firm believer that that's probably a thing, but also know of a situation where a husband and wife both had covid at the same time, and he tested positive for covid and she never did. And I read somewhere that just because you don't think you had the virus, doesn't necessarily mean you didn't pick it up and retain it in your system without symptoms, but I do think a great many people suffered illness from the vaccine itself.

I was going to a doctor in NC because I had retained gadolinium from a contrast dye in my system, and he told me not to get the vaccine because my immune system was already compromised from the contrast dye , and that the vaccine itself compromises immune systems.

So, I never got the vaccine, but did have the virus one time and tested positive for it.

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Scientists are engaged. Your Long Covid has a name in the medical journals: ‘post-acute covid-19 vaccination syndrome’ (PACVS). I've attached a science based detailed web page. It does help to download the PDF file and take it with you on all doctor appt. related to your PACVS. There are doctors who will a.) Review the facts of what the covid vaccines did to humans; and, b.) help you find solutions that will deal with the maltase that don't cause further deterioration. Take this to your local physician and asked them to 'engage' as you may be pleasantly surprised that your small town doctor may be the one you've been looking for, they just need a nudge! https://www.sciencedirect.com/science/article/pii/S240584402501864X

Back in 2024 the National Institute for Health, a US Gov Agency 'engaged' in a public way. They have labeled all these symptoms of Long Covid: The Post-Acute COVID-19-Vaccination Syndrome in the Light of Pharmacovigilance. What an appropriate label and a calling out of Covid vaccine connections since Pharmacovigilance means: 1. The detection, assessment, understanding and prevention of adverse effects of medicines. While it is harder to get doctors to read this report, it is worth reading to get correctly diagnosed and to change the way insurance providers think on the matter of Long Covid coverage: https://pmc.ncbi.nlm.nih.gov/articles/PMC11680367/

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I gathered a lot of my research from LDN Research Trust in searching for help and there are 4 guides for 2026 that they have listed that may be helpful, and it was suggested that I share with the specific groups to which they may apply and help.

Shared files

LDN 2026 patient guide (LDN-2026-patient-guide-1.pdf)

LDN 2026_Prescriber_Guide (LDN-2026_Prescriber_Guide-1.pdf)

LDN 2026_Mental_Health_Guide (LDN-2026_Mental_Health_Guide-1.pdf)

LDN 2026_Dosing_Guide (LDN-2026_Dosing_Guide-1.pdf)

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Profile picture for LadyDi @hockeemom

I have had Covid 3 times. I have taken all vaccines offered. My last virus was June 2023. Went on vacation (motorhome) July 23. Do not remember leaving home (SW FL). Arrived in Alabama totally unresponsive. Husband got me to the nearest hospital where I spent 5 day in ICU with total system failure. I had no idea where I was. Could not stand. They were testing everything to try to diagnose me. I was 15 minutes away from getting dialysis but thankfully the Lab results came back improved. I had pneumonia (?related to Covid) so the best DX they came up with was pneumonia=respiratory failure = cardiac failure=MI, A-Fib, runs of V-Tach, Tachycardia etc, Liver Failure, Renal Failure, lack of oxygen to my brain = confusion, brain fog, and low GCS (Glasgow Coma Scale). I lost nearly all of muscle tone.
Now I fall all the time, continue with brain fog, incontinent at night, almost daily headaches, ringing in my ears, FATIGUE, on home oxygen cannot walk very far without EXTREME shortness of breath. I now have nodules in my lungs Pulmonologist orders CT every 6 months to “watch” them. Horrible depression R/T my health. Pulmonologist “poo-poos” LT Covid. Not sure where to go from here.
The ER doc told my husband I would have been dead in another hour. Oh, yes, I deal with so much joint pain and tendon issues. I use a walker as I fall literally all the time. I have balance and dizziness issues now.

I’m going to give this clinic a try and I will update when I can 🙏🙏

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@hockeemom

I used LDN for issues I retained following a procedure with a contrast dye, and then issues I retained following covid, and it has done so much good for me! I take it at night time, and wake up feeling amazing. I no longer have the shortness of breath, sinus issues, metabolic issues, aches and pain in muscles and joints, no more dizziness, the list goes on.
Maybe these guides will provide some information that speaks to you and may possibly help.

Shared files

LDN 2026 patient guide (LDN-2026-patient-guide-2.pdf)

LDN 2026_Prescriber_Guide (LDN-2026_Prescriber_Guide-2.pdf)

LDN 2026_Mental_Health_Guide (LDN-2026_Mental_Health_Guide-2.pdf)

LDN 2026_Dosing_Guide (LDN-2026_Dosing_Guide-2.pdf)

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Profile picture for meshmash @meshmash

@lesligirl02
I have never had Covid (been tested several times), which is the main reason I know I have Post-Vaccine Syndrome. And the symptoms started soon after receiving the vaccine.

Jump to this post

@meshmash

Hi, wanted to share some LDN guides with you that I found when researching LDN for several issues; maybe if you look over them; you might find helpful information.

Shared files

LDN 2026 patient guide (LDN-2026-patient-guide-3.pdf)

LDN 2026_Prescriber_Guide (LDN-2026_Prescriber_Guide-3.pdf)

LDN 2026_Dosing_Guide (LDN-2026_Dosing_Guide-3.pdf)

LDN 2026_Mental_Health_Guide (LDN-2026_Mental_Health_Guide-3.pdf)

REPLY
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