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What preparations do you make when travelling with epilepsy?

Posted by Chris Gautier, Volunteer Mentor @santosha, Feb 23 5:35am

As I prepare for a 3-week holiday in Uruguay, I want to start a discussion about travelling with epilepsy.

Travelling with epilepsy takes a little extra planning — but it shouldn't hold us back from exploring the world or simply getting from point A to point B with peace of mind.
For this trip, I'm making sure I have enough medication and that everything I take is accepted in Uruguay — especially my CBD oil. As always, I carry a letter from my doctor with details about my epilepsy and the medications I take. Since my seizures aren't fully controlled at the moment, I also researched the medical facilities at our destination, which brings me real peace of mind. And thankfully, Uruguay and Brazil share the same time zone, so no adjustments needed there!

I'd love to hear how you prepare for your holidays away from home. Please share your experiences — your insights could make a real difference for someone planning their first trip since their diagnosis, or who has been hesitant to travel at all.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

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msaneurysm | @msaneurysm | 1 day ago
In reply to @med951 "Time zone travel…..how do you all manage medication times when flying across 6-8 time zones? Thanks." + (show)
Profile picture for med951 @med951

Time zone travel…..how do you all manage medication times when flying across 6-8 time zones? Thanks.

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@med951
I carry 1 mg. sublingual ativan which is used prn for seizure. If I’m afraid I’ll get off schedule with meds or lack of sleep, I go ahead and take half of one.
Meds in a weekly case-always.
Works for me!

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louissc | @louissc | 1 day ago
In reply to @marianne72 "@santosha excited to learn more about how you managed life on your trip! It’s courageous to..." + (show)
Profile picture for marianne72 @marianne72

@santosha excited to learn more about how you managed life on your trip! It’s courageous to set out in new ways after so many adjustments and changes.

I agree about epilepsy being often a hidden condition, then it can also become hyper-visible! I’m finding that people-myself included-have a lot to learn and unlearn about this condition.

Hearing about others’ perspectives and experiences in different places, ages, and circumstances is educational and usually encouraging.

I’m learning to appreciate what I have and can accept it more fully, knowing how others suffer in ways I do not. Realizing how people all over the world have epilepsy has enlightened me.

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@marianne72
Hi @marianne72 , I believe the degree of public awareness does not correspond with the number of patients is because the number of neurology specialists are few, thus the exposure of public to anything neurology related will be fewer by comparison to other conditions like diabetes. Medical graduates opt for fields with lesser degree of responsibility and challenges. I’m also glad to know challenges faced by me is not unique to only 1 country.

Health ministries /departments have to be the ones creating public awareness. I believe we face discrimination wherever we are, because others do not understand and that in turn affects our employment prospects and other areas. It’ll be cool if it can be an international awareness campaign instead of merely a national one. Haha but that’s too ambitious I guess.

Cheers,
Louis

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