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Recent diagnosis of early stage T1 NIMBC: Any tips?
Greetings. I am 69, and diagnosed in January with early stage T1 NIMBC. Was being treated for what was thought to be hematuria related kidney stones. Only risk factors were being male and over 55. Had 1 TURBT in Kansas City in January. Wanted a second opinion before going further. Got connected to Mayo Clinic at my wife’s suggestion. Have had 2 TURBT surgeries there since. Pathology has remained the same. T1 NMIBC. Scheduled to begin my 6 week BCG treatments in early June at Mayo. Encouraging, yet somewhat apprehensive. Have been doing a lot of reading up on the process, but would really appreciate any suggestions to make it go easier.
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@tootall10
Google or ask your doctor.
It's not difficult.
By the way, what is regular old NIMBC?
Best wishes.
@dks2500 I had a course of six BCG treatments in Omaha during the spring of 2024. BCG then became unavailable locally (April 2024). The treatments were at my urologist's office, and went off without a hitch. I had nine months of Adstiladrin treatments in 2025-2026, when the cancer returned, and now am hearing into another course of 12 BCG treatments in May-June. My treating physician is now at Mayo - Rochester, and he has assured me Mayo has a steady supply of BCG that will not be interrupted. Actually, Mayo has recombinant BCG (rBCG), which is an engineered version of the traditional Bacillus Calmette-Guérin vaccine, modified to enhance immune response for treating non-muscle invasive bladder cancer. I will do my treatments here, at an infusion center or my local urologist's office, if the rBCG is available locally; otherwise, I'll drive to Mayo for the treatments. Best of luck to you.