Anyone else learned had PD after anxiety, depression, panic attacks?

Posted by doorman @doorman, Mar 19, 2022

So after three long years suffering from anxiety , panic attacks , and depression…..I find out the cause…drumroll……Parkinson’s Disease. Turns out, my symptoms: loss of smell, constipation, tripping over my own feet, lack of arm swinging, and horrible anxiety, all are EARLY SYMPTOMS OF this disease. Who would have thought. Anyone else in the same boat?

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Profile picture for Lisa Lucier, Moderator @lisalucier

@cheryllynn1003ky - welcome to Mayo Clinic Connect. Having anxiety is rough, or at least I've found it so before finding the right prescription at the right dose for me.

I'm sorry it's gotten worse with anxiety and panic after diagnosis.

When were you diagnosed with Parkinson's? What treatments have you done for PD?

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@lisalucier
Feb 2025, went through 9 months of try to find out what was wrong , one day I just couldn’t walk, stuttered words, extreme pain in back and legs, nothing showed up on tests, kept me 5 days and put me on antidepressants, said I had severe anxiety and depression, medication drove me insane, I was almost bedridden, taking me off medication trying another, wasn’t sleeping eating , just crying all day, then I asked hospital Dr if they could do a test on my brain, I was having like my mind told my foot to move, but it didn’t…..took tests, walking all sorts of silly things, said I was showing small signs PD…
Put me on carpdopea levopoda 1 daily, after 3 months felt fine, then the anxiety and panic started coming really bad, like 4 a week, debilitating, back to square one, my symptoms became more prominent, tremors shaking antsy could not sleep, seen a nero dr, upped the CL….. and another antidepressant, I feel like I need more “on” days, I’m not just ready to go out much, don’t know from day to day when one will hit, it’s awful, the symptoms working in my body , shaking so bad can’t move or talk, electrifying sensation whole body, it lasts from 2-6 hrs cause sometimes meds wear off before next dose. I’m on Crexont 70mg/280 and Amantadine 100mg 2 per day

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Profile picture for raebaby @raebaby

REM sleep is when you go into a deep sleep, but people with the disorder don't become paralyzed while they sleep and they kick and thrash and act out their dreams. They aren't aware they do it.
I finally had to have my own room. Once when he was thrashing all over the bed while asleep I woke him up to ask what he was doing and he said he had a dream that he was running,

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@raebaby
my husband left my bed 5 yrs ago

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Profile picture for cheryllynn1003ky @cheryllynn1003ky

@raebaby
my husband left my bed 5 yrs ago

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@cheryllynn1003ky - did he leave your bed due to shaking or thrashing? If so, how do you feel about it?

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Profile picture for Lisa Lucier, Moderator @lisalucier

@cheryllynn1003ky - did he leave your bed due to shaking or thrashing? If so, how do you feel about it?

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@lisalucier
yes, i would scream and carry on, it kinda frighten him

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Every day I read something here telling me this or that is an early sign of PD. It would be so helpful to so many of us if They would hand each graduating med student a pamphlet listing these signs. Those coming behind us could be helped so much earlier. Just saying....

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Yes, my husband. He developed severe depression and anxiety right after retirement 14 yrs ago. Hasn’t been to his primary in 7 yrs. He sees a psychiatrist and a cardiologist
One of his 1st psych Dr.’s had him do a brain scan. They found nothing, but she said, there may be a neurological problem develop. Sure enough. Drags his feet, very stiff, head forward. Falls a lot, however, he, he had back surgery a yr ago, which has helped a lot. He doesn’t want to go to another Dr to find out for sure. I wonder how much the medication helps anyway!

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My husband was diagnosed with PD in April 2025. While he does have tremors in his right hand and right leg, his primary and most difficult symptoms are autonomic. Hot and cold waves happen hourly - he's either taking clothes off or putting layers on. He has continuous nausea and has lots 30 pounds and anxiety sometimes escalates to full blown panic attacks. He is not able to plan outings because he never knows how he will feel. He has not had a 'good' day in a year. He takes 52.5/210 Crexont three times a day and takes 11.25 mg of Mirtazipine at bedtime along with 1 mg Xanax for sleep. (that addressed the insomnia). He has tried many SSRIs like Paxil, Lexipro and just tried Burpirine but none of those help - in fact they heightened his symptoms. I so sorry for anyone who has PD. I appreciate this space to share and also appreciate the caregivers who also are trying to help.

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