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Male with neurogenic bladder: what are my options?
I’ve been diagnosed with a neurogenic bladder. I’ve been presented two options one self catheterization and the second supra surgery. I’m frightened of the whole situation. Who has experience with these two options?
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@2will2 I share your misgivings about self self catheterization. I am aware that many people do it successfully, but I still can’t imagine carrying all the supplies doing it while traveling, especially with bathrooms in unsanitary places. I am in Indonesia on our way to Thailand very happy to be using a valve.
@windrider354
Thank you for taking the time to reply while you were on a cruise. May I ask how old ? Also, how long have you been using the valve I saw my urologist yesterday and he’s gonna let me try using the catheter valve. The next time I go have my catheter changed in four weeks. This is all very new to me. Can you give me any for suggestions? Things that I should be aware of it before I start. Had a catheter right now in me for a number of months so I’m used to having something in my penis. That is become like a part of my life. It’s just hard for me to think that it’s gonna be a part of my life for the rest of my life. But we always do not know what lies ahead for us. And again, I thank you for your replying again. Enjoy the rest of your vacation.
@2will2 @wadelong I would not try the interstem, it doesn't work or at least it didn't work for me. I have attached a picture of my catheter, I hope this helps. I was devastated when my bladder stopped working after surgery only to find that I had to self cath, but now it's a part of life. It's never a bother to ask me questions. I am 56 years old.
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1 Reaction@2will2
Dear;
Apology for late reply, I read it yesterday.
As for your bag it will tell you when to use the CIC as you monitor the capacity on a daily basis.
I am using teh CIC for 30 months now without any problem or complaint, as my previous narrators said it will become part of your life and you will coexist with it, just follow the instructions that came with all the self cather, I am using French 12-40, I tried many brand until I found the most suiitable for me, you can do the same.
Wish you all the best.
My bladder is not responding at all I am an Underactive bladder. but for you you will definitly have to consult your urologist.
If you need any additional information feel free to ask.
Maw
Thank you for taking time to reply to me. My bladder also is
Underactive. I went to a specialist two weeks ago where they removed my catheter and then fill my bladder with a water solution. They then asked me to urinate. Truly, after trying, I was only able to expel maybe 50 mL which is nothing the way they do. This is somehow my bladder or penis is connected to a recording device. That is a print out showing any type of exertion or pressure that my bladder is performing and was doing hardly anything at all if anything. So it looks like this is my life at this point on. I’m allowed to situation as a result of spinal surgery. Before the spinal surgery, I had no life confined to a wheelchair. And all of that came on suddenly. I now have a life where I can get up and go out and drive and walk my dog and go to church and go out to eat dinner. I am thankful for that. The payoff is the bladder situation. And I have to tell you I’m still scared about the possibility of doing self catheterization. I might visit with a neurologist Monday. It looks like I’m going to try to do the catheterization valve and see how that works out. In a way I feel like such a wimp because I have met people like you another man here in this website who have it all together as far as self catheterization. I admire them. Thank you for letting me kind of rattle on.