Male with neurogenic bladder: what are my options?

@2will2 please forward the details of this valve. I have to urinate 7 times during the night. This has been on going for over a year since BGC for bladder cancer. Plus severe stabbing pain daily.
Thanks

@toentje
I have an in dwelling catheter connected to a fully bag. Neurologist wants to do something different in the near future. He was talking about self catheterization, which I really am very apprehensive about. If I keep the indwelling catheter, this catheterization valve is attached to the end of it instead of to a fully bag. There’s a valve on it and I can release the urine in my bladder and reach out to three hours instead of inserting a catheter into my penis every two or three hours. At night a fully bag is hooked up to the valve so it drains automatically during the night and I shouldn’t have to get up. Wish you luck with what’s happening by you and whatever you were going to do. And never realized there were so many men and similar situations as you and I. Hang in there, friend.

@toentje The valve is a simple device that plugs into the end of the Foley catheter. I have been using it 24/7 for about three years (changing every month). You can tuck it inside your underwear or, I suppose, use it with a stabilizing band like you would with a bag. It simply avoids a leg bag and night bag so you can wear shorts, etc. An alternative would be to use it during the day and keep the night bag to avoid getting up multiple times during the night. I usually get up about three times. The valves are available from Amazon, brand name ugo (cute huh?).

@windrider354
Good morning. Can I ask why you don’t use the night bag so that you can sleep through the night? Is it difficult to switch to the night back? Right now I have the catheter in the Foley bag hanging down my leg. I’m really looking forward to getting rid of this huge bag hanging on my side. I really would like to do what you’re doing with the valve. It sounds like I’d have more of a normal type of life. Any suggestions you can give me your things I should ask or tell the doctor when I go to see him next month? Thank you for your time.

I also have neurogenic bladder.I have chosen to self Cath about 6 times daily. Uncomfortable but I got used to it..

self Cath about 6 times daily

What happens during the night? Also what happens when you’re out living your life then you have to self catheterize? I just felt that I’m out and I’m about and I have the valve. I can release myself in a public bathroom, but I don’t think for sanitary reasons, I could go into a public bathroom and self catheterize. I’m just confused anything you can tell me your suggestions I would certainly appreciate.

basically have the mindset that if I don't I am heading for stage 5. helps me put it into perspective

I have been self cathing for only about a week. We agreed 4x per day was good, but I am finding my urine volumes are < 500ml ( I read thats what you want each time) on the second and third caths, so I am going to try 3x, or 6 hours apart and talk to the doc tomorrow when I have my Urodynamics test tomorrow. It does take a little getting used to, but isn’t too bad. As previous people have said, lay everything out, and wash your hands with antibacterial soap. I wash the genital area and use an alcohol wipe on the tip of my penis as well. I use gloves too which os probably overkill, but I’m still getting used to all of this and paranoid for infection as I just getting over one. Take it slow. When you first insert, it’s easy, a little odd feeling, but it slides right in. When you get to the prostate, you will know and it pinches a little. Just breathe and reposition yourself a little, and go slow. I stand rather than sit. I find stretch and holding the penis firm helps. You will know when you are in.
There is the suprapubic cath option as well, then you wont have to self cath. For me, depending on my UDS outcome, that might be the way to go.

@2will2 sorry for the slow reply. I am on a cruise ship with spotty Internet. I sometimes think about using a night bag to avoid getting up three or four times. there wouldn’t be any problem doing that. It would attach to the valve easily. I just haven’t overcome my inertia. for now, I have gotten used to getting up at night.