Gastritis and very very sensitive stomach

Posted by catgirl309 @catgirl309, Jun 28, 2023

Has anyone here have a very sensitive stomach. You can't even swallow most vitamins because they hurt your stomach. Where you get severe stomach pain just by eating an undercooked carrot. I even tried aloe vera and it gave me stomach pain for 2 days. I tried vitamins through IV but they get very expensive between $100 to $200. I hated how my doctor just calls it long covid and just says just try to eat. I told him it's really hard when everything makes your stomach hurt. All he did for me is just put me on omeprazole.

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I am 69 and got covid in March, and after 8 months of functioning at ~50%, the long covid (LC) seems to have ended. it gradually tailed off, but I caught a cold from hubby in late October and LC was gone afterwards. Fast forward to a week ago and I got norovirus from hubby; dropped 4 lbs, nasty symptoms, extreme fatigue (it didn't initiate LC). He is in big trouble if he gives me a virus for Christmas.
I have had celiac for 14 years and collagenous colitis for 7; I knew what to eliminate from my diet when that hit because I've kept a food log for 14 years (I'm a scientist, we do those things). So, I went from just gluten free (GF) to also no NSAIDs, little alcohol, few legumes, and no cashews. Mostly a FODMAP diet except I can eat dairy, onions, and other. I had pelvic floor physical therapy after a bike injury; lots of folk there with ED, injuries, post pregnancy, and other. Below is a long list, should any of it be useful to you regarding GI tracts that suck:
1) Keep a food log, especially what you ate when you have a reaction
2) lots of small meals with time to digest between if there is GI grumbling
3) Eating enough fiber and drinking enough water. Psyllium as bulk husks or powder is cheaper than Miralax. Drink lots of fluid with psyllium or ground flax
4) Legumes may be better tolerated if fermented (miso, tamari/soy sauce) or if lower-FODMAP legumes soaked overnight and the water discarded (most oligosacarides are on the outside) or some canned beans.
5) Avoid NSAIDs like aspirin. They irritate the GI tract.
6) I eat few processed foods because I've become sensitive to more chemicals. Avoid if the ingredients list is too long.
7) Pelvic floor and aerobic exercises help to keep things moving. Walking, kegel and other PT help to strengthen your core. It is hard to exercise with LC so do in bits with rest between.
8) Check thyroid function with TSH and Free T3 and T4 bloodwork. Low energy could also be lower metabolism.
9) Get enough sleep and avoid stress. The GI tract has a pretty sensitive nervous system and stress hits it hard. Meditation and reading help to keep flares down.

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I am sorry this is happening to you. I have a mostly hate relationship with food since getting Long COVID. Food can smell horrific. I have no idea what I can eat from one day to the next. Buying groceries is really difficult. I am lucky to have one meal a day which is sometimes really small and consists of plain noodles. I have SIBO and gastroparesis. I had gastritis. I stopped taking all Nsaids - ibuprofen. I have received several diet plans, some conflicting. Then there is the issue that I can't eat food if it smells like death. I have pain, cramping and lots of GI issues. I was prescribed Hyoscyamine for help with horrific cramping. I have learned that the gastroparesis is part of the impact of Long COVID attacking my autonomic nervous system. I take Cymbalta and Gabapentin for the nervous system issues. I do think these medicines have lessened some of the pain I experience. I sometimes have no idea if I am hungry or nauseas. Sometimes I am both. I eat and take anti-nausea medicine. I used to eat a really healthy diet and exercise. I can't do either anymore. My goal is to be able to eat something, regardless of what it is daily. I have horrible acid reflux. I take 60 mg of dexilant daily. It does help but does not fix. Sometimes I eat peppermint stick ice cream that I make to help with blistering in my mouth and throat and peppermint sometimes helps to calm my stomach. This has been going on for over 3 years. I had to give up worrying about the quality of food I eat. My Rheumatologist does regular bloodwork to manage my vitamins and minerals. When this first started, I ate bread or potatoes only, once a day, for 9 months. That was all I could tolerate based on taste and smell. Then to add insult to injury, I almost immediately gained 50 pounds. My weight now fluctuates up to 20 pounds a time. I don't eat or drink enough calories to have that kind of weight gain. I am assuming I have bloating and that part of the weight change is due to where I am in the cycle of gastroparesis. You fill up and then finally empty. I am taking citrucel tablets, can't tolerate drinking fiber drinks. This helps a little. Good luck. Again I am so sorry you have this. I hope you can find a way to manage day to day life in as positive way as possible. I am cynical about eating so if food smells good and tastes good it is wonderful!

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Profile picture for lutsche @lutsche

I had stomach pain for almost 4 months. Upper endoscopy indicated mild gastritis, but dr didn't think that was causing this level of pain. It always hurt. He thought that my colon was full of stool - it was and Miralax has helped with that. It was difficult to get more than a few bites down. Presently, I still have very minor stomach twinges and tightness across abdomen below ribs - not really pain, but I can feel that it is still there. I lost 18 pounds, but am now back on a regular diet . Other Covid symptoms that began in October and got worse with knee replacement have just about disappeared. I was in bed for over 3 months with fatigue, stomach pain and shortness of breath. All tests have come back with normal results. I feel fortunate that I think this is almost over. I am being very careful, though and don't want it to come back.

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@lutsche hi! so the covid symptoms and things getting worse are from mast cells. mast cells release chemicals like histamines as an immune response. people with long covid have it because once those cells are activated usually due to an allergy, surgery, virus...they stay hypervigilant for life. i have to stay on a low histamine diet, antihistamines and i take pantropazole, famitodine and sucrafate for my gastritis/ulcers.

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Profile picture for catgirl309 @catgirl309

Hi did you find that certain foods really irritated your stomach with the gastritis. Like garlic, vinegar, vegetables that are not fully cooked. I basically have to eat mushy vegetables. I find when I'm in pain I don't eat so much so that I'm not regular. I do find though when I do go to bathroom I do feel better. How often do you have to use miralax?

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@catgirl309 histamines!!!! you have to eat a low histamine diet or mast cells go crazy and cause tons of inflammation

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