Idiopathic Pulmonary Fibrosis and Hoarse Voice

Posted by frane1939 @frane1939, Dec 31, 2018

I am curious about the hoarseness my husband is having. It seems to be getting worse and at times, it is difficult for me to understand him when he speaks. I am wondering if others with this disease are having the same issues; and, if so, what they are doing if anything about it.

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I don't think so - the doc has never mentioned it. I don't go by that much - only if she says [better, worse, about the same]. Same with my other health issues - my body will never be perfect, I'm just hoping it lasts until I don't need it any more.
Sue

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Well I've heard if after 2 years they havent spread, they probably wont. Was laughing at myself thinking my anxiety is so crazy how would I know if my shortness of breath is due to anxiety or scar growth? I do hate that I worry so much.
Speaking of which. I've been waiting to speak with this "lung scarring specialist " since May 10. And today is the day! She should be calling in about an hour.
😯

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My brother who is 77 was diagnosed with Idiopathic Pulmonary Fibrosis last year. We speak on the phone several times a week, I’ve noticed his voice gets very hoarse. As the conversation continues, he becomes more difficult to understand. We used to stay on the phone for an hour and now after 20 minutes, he can barely talk. I appreciate the information on the traditional medicinal teas. I’m going to send him a care package with those teas.

Any additional recommendations for controlling symptoms is greatly appreciated. He’s not one to do Internet research and his wife is in denial.

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