What exactly does low dose naltroxene (LDN) do for fibromyalgia?
What exactly does LDN do for fibromyalgia? Does it relieve pain? Depression? it sounds like it is for alcohol/drug addiction...but a lot of people have recommended it...please share how it is supposed to help, thank you
Also, does anyone have trouble with constipation???
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@hendriksgal I took a longer time to get to the 4.5mg dose, which was my choice. But my pharmacist advised me to take longer than three weeks. I didn't notice any positive benefits until I'd been on the maintenance dose for 1-2 months and then I had gradual improvement and today feel like I did before my symptoms flared up.
Looking back, I think I've had fibromyalgia for a long time, but it used to only flare up a couple times a year for 7-10 days, usually during the change in seasons. At that time, I thought it was the flu. Then a few years ago, it progressed to headaches, only on the left side of my head, that would last an about six weeks and then go away for about six weeks. I went to so many doctors for that and even had a biopsy of my temporal artery to rule out giant cell arteritis (GCA), which can be very serious.
When I got Covid in 2021, it triggered a major flare-up of body pain and I suffered with severe flares and terrible insomnia until I found LDN. I think it somehow triggered my immune system to get back to normal or something. I thank God every day for what seems like a miracle cure.
@daisy17
I got covid pneumonia myself in 2020, was sick for 6 week.. I think it triggered it worst as well and its been all down hill since
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1 Reaction@daisy17 Thank you.
Iii was just told I have Hashimoto's and now, a pill for that so I am further overwhelmed because Rhuem. Dr. didn't run the full thyroid panel 2 years ago like I requested ~ only the TSH. told me I had no thyroid issues. 2 yrs. of my life untreated. He assumed it was "unnecessary"
So I feel invisible and disrespected.
If I can find a new Dr. who cares enough to listen to me; maybe I'll try the low dose LDN.
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1 Reaction@lena1
I fought for my hypothyroid diagnose too. I take Levothyroxine as well for it.
Yes they just check the basics..I went thru probably 10 doctors when I lived in Illinois. I found a great Endocrinology doctor in SD that tested everything and caught the hypo. He also diagnosed my bad gallbladder too, not in his field, when I was sent to the hospital for 14k in tests for my heart. It was a gallbladder attack... he caught it on a routine followup when I told him the issues I was having.
Look hard and Find the right dr! I saw Dr Chris Aakre at Mayo. He was excellant and very through. He took the time to look at all my past issues.. and didn't dismiss them. Toook 10 years to find the right doctors!
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1 Reaction@lena1 I also had thyroid issues start over 30 years ago. I had 1/2 of my thyroid removed then to biopsy a cyst that turned out benign. I was never told to start taking calcium so ended up with severe osteoporosis (I'm now 76). Two years ago I had parathyroid surgery and the surgeon removed my remaining thyroid because it was encased in scar tissue. I take Synthroid.
@hendriksgal Have you tried LDN?
@daisy17
I'm on it now. Its working great for me
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