Has anyone experienced itchy skin (pruritus) with CKD?

Posted by pranny @pranny, Feb 20 4:47pm

Has anyone here experienced Pruritus in Stage 2 ckd. Waiting on my Nephrologist appointment but asked my Urologist is this what's going on with me her response was no because I'm not on dialysis or in kidney failure I previously went thru this and saw several other Dr's and they couldn't find anything causing it it's driving me crazy especially at night. Could this really be kidney related

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Profile picture for mc2230 @mc2230

I also had severe itchy skin on my hands to begin with. Went to alergist, did patch testing, I am allergic to tixocortal pivilate. Sure nobody knows what that is but I stopped using all kinds of soaps, detergents etc. I had an ointment prescribed that helped. Itching went down to the backs of my knees, my neck and a few other breakout areas. Oinment helped but when I passed a 7mm kidney stone most of the itching and skin irritation is gone. Have an appt with urologist in 2 weeks and allergist in a month. I am convinced itching is from kidney. Doctors give me a HMMMMM. Never been diagnosed with CKD or other issues but I will continue to explore.

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@mc2230 I am convinced as well. Every bit of information I have read convinces me. Mine has been diagnosed as exema. I don't have any rash but get hives when I scratch.

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Yes, it was definitely kidney related for me. My itching symptoms were so bad at times I was in tears. I have end stage kidney disease. There is a new medication that I came across and talked to my dialysis staff about and it took me awhile to make the drs understand that it was related. So now I'm getting it 3x aweek in dialysis by intravenously. And its working quite well. I have not had any itching at all. It is called ( Korsuva)

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Profile picture for kirsch @kirsch

Yes, it was definitely kidney related for me. My itching symptoms were so bad at times I was in tears. I have end stage kidney disease. There is a new medication that I came across and talked to my dialysis staff about and it took me awhile to make the drs understand that it was related. So now I'm getting it 3x aweek in dialysis by intravenously. And its working quite well. I have not had any itching at all. It is called ( Korsuva)

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@kirsch Welcome to Mayo Clinic Connect! And thanks so much for giving us a possible remedy for the itching we kidney patients all seem to get!

How long have you been on dialysis?
Ginger

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Profile picture for Ginger, Volunteer Mentor @gingerw

@kirsch Welcome to Mayo Clinic Connect! And thanks so much for giving us a possible remedy for the itching we kidney patients all seem to get!

How long have you been on dialysis?
Ginger

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@gingerw since November but have only been on the korusva for around 2 months.

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Itching may be a sign that your phosphorus is high. Consult with your nephrologist. Cutting down or avoiding foods with a content high on phosphorus (milk, cheese, nuts, chocolate, cola beverages, processed food with added phosphate) will help. Phosphorus is detected through a blood test. The goal is to keep phosphorus betwen 3.5 and 5.5. Your nephrologis may prescribe binders to maintain the levels of phosphorus under control. Good luck!

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