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Bullous pemphigoid
I went to bed one night fine and dandy, woke up next day with a light rash on top of both my arms. It rapidly got angrier, big red very itchy. Was spreading quickly. I went to my Dr. who had no idea at first what it was. Discovered it was Bullous pemphigoid. It's been almost 2 months and I'm finally getting better. Pure agonizing hell it's been for a lot of it. Eventually I had jawbreaker sized blisters, also some close to baseball size all over my lower legs, ankles, top of my left foot. When they eventually popped that left me with a lot of raw flesh and pain. I would sure love to hear about your story and how your'e making it through. At times I felt very terrified and alone and I have a wonderful family and husband helping me. I have so much more to say about the meds and lack there of but I'd like to see if I'm going to get any response here. I'm a 59 year old lady and this is my very first support group. Please feel free to chat with me, maybe sharing some of this misery will help, not to mention the sharing of experience. Thank you for reading!
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Greetings. I am not familiar with DSAP other than it being a hereditary condition. I think ALL autoimmune diseases causes some level of inflammation. My personal opinion after 40 years of practice is that inflammation, from whatever origin, is the cause of most clinical problems. Vesiculobullous diseases (such as BP, PV) are all autoimmune inflammatory problems specific to some cellular layer of dermal and/or mucosal tissues. The current treatments tend towards monoclonal antibody therapies, usually infusions/injections which interrupt or replace the wayward innate immune cells. I've been looking at alternative therapies because I've learned you have to be your own health-care advocate.
Barbara, my understanding is that eczema is caused by an immune reaction which causes inflammation.
You asked about what people had prior to their eczema diagnosis. In my case, I had a couple of years of chronic urticaria. I was about to start treatment with Xolair when it started to resolve on its own, but shortly afterwards I had the initial BP-like outbreak, followed by more widespread (but not as virulent) eczema.
I had mild eczema, my BP started with deep, severe itching and initially Dr thought it was contact dermatitis—their usual default. Started prednisone. Then little blisters occurred and Dr did biopsy x2 to confirm BP. Six months on Dupixent and now clear.
BTW, if any insurance denies Dupixent, have physician help you appeal with biopsy result and photos.