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Tymlos - how does ANYONE on Medicare pay for this drug?
I have been 'beating the bushes' to find help. I make just over the financial cut-off line for Forteo and Tymlos is worse. Their financial 'cutoff' is 13,000 and change (you can't make more than that per year!!!)
I am disgusted. I have reached out to every possible financial support organization and nothing works. I am not rich but if I pay what they want me to pay I will lose my condo!
I've tried the PAN foundation and all others like it. Social Security's rule is that you not make more than 20k a year to get help.
I have severe osteoporosis. I can't take bisphosenates. I am really angry at these greedy drug companies.
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@tangydog , I will look into UHC AARP. I meet the criteria except I have not done step therapy. My doctor did not recommend bisphosphonates.
I, too, had an issue with getting Tymlos. My endocronolist submitted my RX in February of 2025, after multiple phone calls to Medicare, my part D RX plan, and a letter from my doctor stating why Tymlos was the best solution, I was able to get Tymlos in June 2025 if I paid the first $2000, after which the cost would be $0. In January 2026 I was again required to pay the first $2100 (new Medicare requrement), after which the cost is $0. The process is indeed a challenge, however with Tymlos my DEXA scan is showing improvement.
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3 ReactionsOne year ago, my doctor prescribed Tymlos daily injections. I have been very resistant to taking any drugs because of side effects, but my T scores were so low, I finally decided to try it.
I was on Tymlos for ten days before I had to call it quits. The side effects were just unbearable; I felt like I had the flu every single day.
Here is the outrageous part: I had to pay $1900 up front, which supposedly was the actual cost for six months of the drug, but they made me pay for it when I began the drug. Because I had to quit after only ten days, there was no recouping the money. Essentially, I paid for six month of Tymlos and was only on it for ten days. What a racket. I wish I would have known how I would react to the drug.
I am currently on Evenity; the side effects are not as bad but some are still with me every day, like fatigue. I will give it six months to see how I tolerate it and then decide what to do.
I have been a walker and exerciser my entire life, beginning in grade school. In my case, I believe, because my Mom had it, that it was more hereditary. I have five sisters and none of them have it yet, and we are all in our sixties and seventies. I drew the short straw, I guess.
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1 Reaction@pam52 YOU HAVE GOT TO BE KIDDING!!! That is horrible and unconscionable! What a blatant rip off!!! I'd raise hell about this if you haven't already. That is downright obscene!!! UGH.
@pam52 My doctor recommended Tymlos and they are working to get me approved for it through Medicare Advantage. If they want money upfront I will refuse and try something else. Is there a next best thing that doesn't require $2,000 up front? Did the switch to Evenity require that?
@shellinaya
Fortunately, Medicare is covering the cost of Evenity, which is filed under Part A because they classify it as a medical expense. My doctor just had to get me approved for it first before she could prescribe it.
Let me know if they require you to pay for the Tymlos up front, please.
If they do require a lot upfront, even $1000, I won't be taking it. I'll let you know.
Is Evenity working out well for you so far? For some reason my dr. didn't want me to take that.