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Multiple Meningiomas
My sister has an appointment at Mayo Clinic July 26th for a 3rd opinion for 3 recently diagnosed meningiomas. Has anyone been a patient of Dr. O'Neill or Dr Meyer at Mayo? She had a meningioma surgically removed in 2001 after a seizure.
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Hi @07ram, thank you for the MDAnderson recommendation. Were you offered a choice between Gamma knife or cyberknife? What was the cyberknife procedure like?
Sorry I did not see this sooner. My wife was a patient of Dr. Meyer. He is a gifted surgeon and an amazing doctor. IIRC he is the head of the Neuro department now as well as head of the Medical Education at Mayo. None finer in my estimation.
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1 ReactionThanks so much for your reply. My sister is so worried about having any treatment at Mayo when she lives in Atlanta. She is getting conflicting opinions here from neurosurgeons she has seen and wants to go to a major medical center like Mayo for a third opinion. Did your wife have radiation or surgery at Mayo. I hope she is doing well.
I was offered gamma at MD Anderson, The neurosurgeon who removed my meningioma in Austin, TX recommended the cyberknife, I had the cyberknife in Austin, TX. The cyberknife procedure was real easy and comfortable for me, I had no side effects nor any sensation of burning it was a positive experience, they were 5 consecutive 1hr. Sessions. I would know in Oct. If it worked or not I am having my MRI then, to see if tumor stayed the same or if it grew.
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Good Evening Colleen,
I am still getting daily reports from brain and nervous system instead of brain. Can you switch me over somehow. My sister's appointment is July 25 at Mayo. Hoping for some answers and encouragement.
Best,
Nancy
Hi Nancy,
Here's what you should do to stop receiving daily digests about the Brain & Nervous System group and to start receiving notifications about the Brain Tumor group.
1. Go to the Group Directory https://connect.mayoclinic.org/groups/
2. Click +Following on the Brain & Nervous System group.
3. Choose "Unfollow. Do not notify me about this anymore." from the drop down choices.
4. Click Update and close the pop-up.
5. Click +Follow on the Brain Tumor group.
6. Choose "Email me when new posts appear and include in my daily digest."
7. Click Update and close the pop-up.
Read more about How to Update Your Notification Settings here https://connect.mayoclinic.org/discussion/tip-how-to-update-your-notification-settings/
@nancye3 I am not sure if you have already reached out to Concierge Services, but we are happy to help you plan for the upcoming appointment on July 25. Give us a call, our advice is complimentary to Mayo Clinic patients and their families: 507-538-8438
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1 ReactionThank You! My sister has that information. Mayo booked her flight and hotel room.
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1 ReactionI am very worried about the possibility of my sister having surgery at Mayo when she lives in Atlanta. She had complications after her first surgery and had to have surgery twice more due to a hospital induced infection. I have confidence in the Docs at Mayo but she will not have me or any family there to visit and comfort her. Her appointment is with Dr. Burns on August 9th. Dr O'Neill told her one of the tumors on the right had grown 30% in one month. Any feedback would be greatly appreciated.
Thank You,
Nancy
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1 ReactionHow is your vision now? did you end having more surgeries or more radiation since 2017? Thank you for sharing your experience. I'm going through a very similar one.