How do you deal with oral allergy syndrome and histamine intolerance?
I'm not sure if this is the right place to write this, but I'm dire need of a few words of support, so I'll try here.
For a few weeks now I've had slight difficulty breathing and some edema and tingling in my mouth when I eat most things. I've already done the tests and I have no allergies other than grass pollen allergy, but it has been manifesting this way, instead of through my respiratory system.
My worst symptom is actually difficulty swallowing, as I feel as if there's two lumps on the sides of my throath. Eating solid stuff makes the feeling more bearable, but drinking water makes it worse. Going out, even with a mask, seems to aggravate it too and the space seems to become some narrow I prefer to spit than trying to swallow. I carry an oximiter and it doesn't seem to affect my oxygene levels. The only thing that seems to help the feeling is tying a moist towel around my throath for a little bit of pressure. (weird much?)
I went to the doctor about 8 days ago and he looked at my throat for the grand total of 3 seconds before declaring I needed a 10-day round of amoxicilin and 7 days of Predsim 20mg. I'm now on my eight day of antibiotics and I feel a little faint when I take it. I was also supposed to stop taking the Predsim, but I feel like it is the only think protecting me from the throath edema, since the antibiotics cleared my sinus, but are not working for this weird feeling in my throat. I'm thinking of stopping the antibiotics before I complete the 8 days, because I'm now afraid that the faint feeling means more. Should I do it?
So today I went back to my allergist and the first thing she said is that I could totally have an anaphylactic reaction because of my polen allergy. She just said it like that, two minutes into the consultation and with a very calm voice, looking straight at her computer. She also said I should only eat what is on the low-histamine diet and she also made another extensive list of things I shouldn't eat (basically all fruits and veggies) to avoid the tingling feeling. When I asked her what I was supposed to eat (I'be been living on a diet of meat, potatoes and rice and potatoes are starting to make my mouth tingle too) she laughed right on my face and didn't give a solution. She just straight out laughed. I felt like crying, since eating has become such a trigger to me I do it twisting my hands.
I was already on the verge of despair, but I soldiered on and asked her for something to protect myself from reactions, but unfortunately, Epipens are not available in my country. She said she wouldn't give me one anyway as I'm low risk for now. I don't feel low risk! I told her that the feeling of swelling in my throath and mouth was causing me to panic and that I needed at least an inhaler with some corticosteroid to help me keep it down. She refused me.
I have no idea what to do now. I'm going to use the last of my economies to go to another allergist this Thursday, but I have no ideia how to survive that far. At the end she threw me out because she had another patient and she told me to not leave the house to avoid the allergen, to not be alone ever and to not eat anything that is not on the diet. She washed her hands of everything, she said I could basically react at any time, but at the same insisted it was not serious. I feel like she now only crashed my mental health (and then she had to gal to send me to a psychiatrist to investigate my fear of dying), as I have a constant feeling of impeding doom following me everywhere, but also put a stop to my indepedent life. I'm now a house-bound, scared 35-year old baby depending on my family for everything.
In the end she tripled my anti-histaminics dose and that was it. I'm completely stumped. What do I do? How do I go on from now? How do I live with this constant voice telling me something right around the corner could just kill in 8 minutes? I have no idea how to go on. (And now I feel too dramatic, sorry)
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@npbranco
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1 Reaction@honeycmb
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1 Reaction@terrirussell Your response, of May 2023, is really wonderful!! I had been looking for something else and found your comment. You’ve probably helped many people you don’t even know yet!! Thank you, thank you! Becky
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1 ReactionI feel your pain. I control my histamine reactions with generic fexofenadine (Allegra) and a lo dose of prednisone everyday. It took 5 years to get things under control. It is best to speak to your doctor about this. I always have albuterol on me and an epi pen. My PCP supports me with all of this since I haven't had good experiences with allergists.
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