Neuropathy with back pain exercise

Posted by steveinmontana @steveinmontana, Apr 4 3:53pm

I am 73 and haven't been diagnosed with any kind of PN yet, although, through extensive research, determined that I have some form of PN in my feet. I have a conductive nerve test in June (first available). Experiencing numbness in toes and balls of both feet moving to ankles, that causes balance issues. No falls as of yet. To exacerbate this, I suffer from spinal stenosis at my L4/5 and S1. I've had a radio frequency ablation that failed and just had an epidural.

Enough about my symptoms.

I've only been able to bear standing no longer than 10 or 15 minutes without having to sit to relieve the back pain, so exercise has been out of the question for me. About a year and a half ago I bought a treadmill that just sits there because I just can't use it for much more than 5 minutes due to my back pain. My granddaughters get more out of it when they come to visit!

So, finally my question.

What is a good indoors exercise machine I can use to get back into some halfway decent shape? Get the legs strengthened and burn some calories. I used to have a recumbant, but found I just didn't care for it and sold it. I'm thinking an old fashioned stationary bike would be best. Good for legs and burning calories and easy on the back. Any other ideas that I can't think of would be greatly appreciated!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for brennankb55 @brennankb55

@steveinmontana - This is really frustrating and has always been hard for me to understand. The sciatic nerve runs through the spinal canal, all the way down into our feet. If the nerves in the spine are being compressed, and they're producing low back pain, sciatic pain, calf and foot pain, why on earth don't doctors see the connection with neuropathy! When I had my first MRI in 2021, it showed a "slight disc bulge at L4-L5" that was pressing on a nerve, but because I had "no back pain" at that time, the concensus was that it wasn't causing my neuropathy. Instead, I was told I had "textbook idiopathic peripheral neuropathy" - to me, that just meant no one was willing to get to the bottom of it because they could simply prescribe drugs like Gabapentin and Lyrica. Now, after the recent MRI that shows ALL the nerves in the spinal canal are compressed, to the extent it's now the cauda equina compression, the current spine doctor is saying, "Hmmm ... I wonder is this is all related? You need to see a neurosurgeon right away." SMH!! Well DUH! It's what makes me soooo doubtful of what we're told, and are we just being duped into going along with the system that puts money in their pockets and very little relief for us. Sorry to rant - I wish you well on your journey. I can't stand more than 5-10 minutes at present. Can't take any pain meds either until I get the shot - no anti inflammatories 5 days prior. Ugh - not that they were doing much good anyway. < sigh>

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@brennankb55 My situation sounds exactly the same! My primary recommends an orthopedic surgeon who does only 1 type of surgery that is very expensive. No one ever mentions pain management or neurosurgery! I have to find that out on my own! My son told me about his neighbor who received injections and they worked. So I've been seeing a pain management doctor who has done an ablation and an epidural, both of which have failed! I think you're absolutely right, that the hospital, which is the only 1 in 120 miles and is a virtual monopoly, works only for their benefit, not the patients! I wait weeks for so.eone to schedule me and weeks for the procedure and pay and pay and pay for what? Nothing! Pain even worse than before! I'm really thinking about looking into a class action lawsuit against the hospital. I can't be the only one going through this! I just have to find a really good lawyer that could do it pro-bono until we get a positive verdict! But how does one find folks in the area who have gone through these battles? I'll have to figure that out!

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I recommend a special program at your local YMCA. My why has a program that I was unaware of called Health Mobility Program. It is wonderful and helping me gain greater strengh in my legs. However i am still having issues with hips, ie difficulty getting up out of chairs, even toilet .

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Profile picture for brennankb55 @brennankb55

@steveinmontana - This is really frustrating and has always been hard for me to understand. The sciatic nerve runs through the spinal canal, all the way down into our feet. If the nerves in the spine are being compressed, and they're producing low back pain, sciatic pain, calf and foot pain, why on earth don't doctors see the connection with neuropathy! When I had my first MRI in 2021, it showed a "slight disc bulge at L4-L5" that was pressing on a nerve, but because I had "no back pain" at that time, the concensus was that it wasn't causing my neuropathy. Instead, I was told I had "textbook idiopathic peripheral neuropathy" - to me, that just meant no one was willing to get to the bottom of it because they could simply prescribe drugs like Gabapentin and Lyrica. Now, after the recent MRI that shows ALL the nerves in the spinal canal are compressed, to the extent it's now the cauda equina compression, the current spine doctor is saying, "Hmmm ... I wonder is this is all related? You need to see a neurosurgeon right away." SMH!! Well DUH! It's what makes me soooo doubtful of what we're told, and are we just being duped into going along with the system that puts money in their pockets and very little relief for us. Sorry to rant - I wish you well on your journey. I can't stand more than 5-10 minutes at present. Can't take any pain meds either until I get the shot - no anti inflammatories 5 days prior. Ugh - not that they were doing much good anyway. < sigh>

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@brennankb55 your understanding of sciatica is incorrect so it’s hard to tackle the rest of what is woven here. The sciatic nerve starts in the lower back in the buttock area and the pain may or may not travel down your leg to your foot. It’s a lot more complicated. A visit back to the doctor to ask a more questions would be helpful. If pain is showing up in your leg or foot and it’s beginning in your spine from disc compression, it is called radiculopathy (referred pain) and not neuropathy (local pain). Neuropathy is when the pain is local and its cause is local. So sciatic pain in your foot or lower leg is radiculopathy not neuropathy. Neuropathy can be caused by nutritional insufficiencies and may be able to be treated by supplementation, exercise, and topical treatments. Radiculopathy on the other hand is caused by nerve impingement at your spine, sacroiliac, hip or knee nerve impingement. My sciatic pain is due to nerves which run through my piriformis and buttocks muscles that are in trapped, and when I sit too much my buttocks, muscle muscles squeeze the trapped nerves that run through there and caused pain in my SI joint area. You can go for painful nerve tests and they will tell you where your pain is originating; you can have MRIs done and they will tell you if you have compression in your spine which may cause referred pain to your legs and feet; it all can be related or it all can be different or a mix of both. My suggestion is to continue getting tested and acquiring more specific information. One way you can tell the difference is by rubbing the area in question and seeing if it makes a difference. If you scratch and itch and it doesn’t stop itching then it’s not a local issue. Neuropathies can be numbed easily by top topical ointment, radiculopathies are much harder to relieve by local treatments.
We do get cheated out of good doctrine these days that is for sure!

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Profile picture for loriesco @loriesco

@brennankb55 your understanding of sciatica is incorrect so it’s hard to tackle the rest of what is woven here. The sciatic nerve starts in the lower back in the buttock area and the pain may or may not travel down your leg to your foot. It’s a lot more complicated. A visit back to the doctor to ask a more questions would be helpful. If pain is showing up in your leg or foot and it’s beginning in your spine from disc compression, it is called radiculopathy (referred pain) and not neuropathy (local pain). Neuropathy is when the pain is local and its cause is local. So sciatic pain in your foot or lower leg is radiculopathy not neuropathy. Neuropathy can be caused by nutritional insufficiencies and may be able to be treated by supplementation, exercise, and topical treatments. Radiculopathy on the other hand is caused by nerve impingement at your spine, sacroiliac, hip or knee nerve impingement. My sciatic pain is due to nerves which run through my piriformis and buttocks muscles that are in trapped, and when I sit too much my buttocks, muscle muscles squeeze the trapped nerves that run through there and caused pain in my SI joint area. You can go for painful nerve tests and they will tell you where your pain is originating; you can have MRIs done and they will tell you if you have compression in your spine which may cause referred pain to your legs and feet; it all can be related or it all can be different or a mix of both. My suggestion is to continue getting tested and acquiring more specific information. One way you can tell the difference is by rubbing the area in question and seeing if it makes a difference. If you scratch and itch and it doesn’t stop itching then it’s not a local issue. Neuropathies can be numbed easily by top topical ointment, radiculopathies are much harder to relieve by local treatments.
We do get cheated out of good doctrine these days that is for sure!

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@loriesco I don't mean to be rude here, but I believe that this site is for sharing experiences, not diagnosing or explaining physiology. By sharing experiences, we can learn from one another and then take that to our doctors for further discussion and research. My kind suggestion would be to share an experience that you've had and allow the person to educate themselves. For instance, I learned that a neurosurgeon did back surgeries from a comment that you and another mentioned, and that my doctors never advised me of! From that little tidbit, I hope to speak to one in the coming weeks to see if I might be a candidate for a minimally invasive laminectomy procedure. I am so grateful for that shared experience!

I hope you have a great day!

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Profile picture for steveinmontana @steveinmontana

@loriesco I don't mean to be rude here, but I believe that this site is for sharing experiences, not diagnosing or explaining physiology. By sharing experiences, we can learn from one another and then take that to our doctors for further discussion and research. My kind suggestion would be to share an experience that you've had and allow the person to educate themselves. For instance, I learned that a neurosurgeon did back surgeries from a comment that you and another mentioned, and that my doctors never advised me of! From that little tidbit, I hope to speak to one in the coming weeks to see if I might be a candidate for a minimally invasive laminectomy procedure. I am so grateful for that shared experience!

I hope you have a great day!

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@steveinmontana I did share my experiences and what I learned from them. Its been 30 years now. Most people don't have access to doctors, nor do they justify paying for them. So I am being helpful. In addition, I had YEARS in university physiology so maybe that is some of that knowledge shining through as well. I do not diagnose; however, people have clearly found that my direction has yielded in the direction I was pointing to. I have lifelong piriformis disorder and sciatica. I learned tons about the physiology of that. You too, have a great day!

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Profile picture for loriesco @loriesco

@brennankb55 your understanding of sciatica is incorrect so it’s hard to tackle the rest of what is woven here. The sciatic nerve starts in the lower back in the buttock area and the pain may or may not travel down your leg to your foot. It’s a lot more complicated. A visit back to the doctor to ask a more questions would be helpful. If pain is showing up in your leg or foot and it’s beginning in your spine from disc compression, it is called radiculopathy (referred pain) and not neuropathy (local pain). Neuropathy is when the pain is local and its cause is local. So sciatic pain in your foot or lower leg is radiculopathy not neuropathy. Neuropathy can be caused by nutritional insufficiencies and may be able to be treated by supplementation, exercise, and topical treatments. Radiculopathy on the other hand is caused by nerve impingement at your spine, sacroiliac, hip or knee nerve impingement. My sciatic pain is due to nerves which run through my piriformis and buttocks muscles that are in trapped, and when I sit too much my buttocks, muscle muscles squeeze the trapped nerves that run through there and caused pain in my SI joint area. You can go for painful nerve tests and they will tell you where your pain is originating; you can have MRIs done and they will tell you if you have compression in your spine which may cause referred pain to your legs and feet; it all can be related or it all can be different or a mix of both. My suggestion is to continue getting tested and acquiring more specific information. One way you can tell the difference is by rubbing the area in question and seeing if it makes a difference. If you scratch and itch and it doesn’t stop itching then it’s not a local issue. Neuropathies can be numbed easily by top topical ointment, radiculopathies are much harder to relieve by local treatments.
We do get cheated out of good doctrine these days that is for sure!

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@loriesco ~ I greatly appreciate you sharing your wealth of knowledge, but I didn't share my complete diagnosis or my knowledge of what constitutes neuropathy vs. radiculopathy. I've had IPN in both feet for about 15 years, getting progressively worse. The more recent CE compression where the nerves exit the spinal canal is causing additional pain/numbness in my left ft, not to mention the incredible pain in my hips and legs. So right now, it's a mix of both. The MRI from 2021 showed nerve compression in my spine, but I had no back pain, so they wouldn't pursue it. I didn't mean to infer that the sciatic nerve is causing the IPN. It's being compressed from sitting, because I can't stand or walk without leaning heavily on my walker. I have all kinds of topicals I've used to calm the nerves in my feet over the years. They are doing very little right now. I'm waiting to get in to see the neurosurgeon and see what additional tests he might order. I also have an appointment in June to see a new neurologist. The prior one just wanted to put me on Gabapentin, hence my comment in my post.
All of this recent problem started when I went to my ortho for pain in my hip - bursisis - which I've had from time to time in both hips. I got a cortisone shot and it helped for a bit. But I complained at my follow-up that my sciatic pain on the left was excruciating. The ortho is the one who referred me to a spine doctor because she believed all of it, including the neuropathy, was originating in my spine. The recent MRI pretty much confirms that! So this Thursday is the first try at an epidural to relieve the pain and inflammation. It's not a fix - it's just temporary. So again, you don't always have all of the information from a post to jump to some of the conclusions you also made. But I do appreciate you weighin in.

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Actually, with everything you just wrote - it reconfirms what I was saying. But now we are on the same page.

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Profile picture for loriesco @loriesco

Actually, with everything you just wrote - it reconfirms what I was saying. But now we are on the same page.

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@loriesco ~ This isn't a competition or platform over who's right or wrong. I've learned a lot from what people have shared, but I don't tell anyone what they should or shouldn't do, nor do I presume to "correct" anyone about their comments. Doing so would be inappropriate and insensitive, especially when stepping into someone else's conversation. We're all dealing with enough agony here without piling on. Likewise, we all have a lot of experience, information and education to draw on in dealing with various ailments, as long as we share that knowledge in a sympathetic and respectful way. I trust we can all keep that in mind going forward.

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Profile picture for steveinmontana @steveinmontana

@loriesco I don't mean to be rude here, but I believe that this site is for sharing experiences, not diagnosing or explaining physiology. By sharing experiences, we can learn from one another and then take that to our doctors for further discussion and research. My kind suggestion would be to share an experience that you've had and allow the person to educate themselves. For instance, I learned that a neurosurgeon did back surgeries from a comment that you and another mentioned, and that my doctors never advised me of! From that little tidbit, I hope to speak to one in the coming weeks to see if I might be a candidate for a minimally invasive laminectomy procedure. I am so grateful for that shared experience!

I hope you have a great day!

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@steveinmontana ~ Holding good thoughts for you Steve that you find a great neurosurgeon!

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Profile picture for steveinmontana @steveinmontana

@brennankb55 At least I'm lucky enough to not have that stabbing pain but once in a while for a few seconds! That would be awful if anyone experienced that all the time!

Hey, I've learned that neurosurgeons do back surgeries! I thought they only worked with the brain! And that orthopedic surgeons and neurosurgeon are different and treat back issues differently! I'm seeing someone in neuroscience to have a nerve conduction test next month. I'm going to see if I can have a surgeon look at my MRI and see if a minimally invasive procedure would work for me!

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@steveinmontana ~ Awesome! Yeah, I had no idea about that either! I thought just ortho surgeons did back surgery. But I guess it's all making sense when my nerves are being compressed in the spine. I'm just really hoping my referral goes through quickly and I can be seen ASAP. The neurosurgeon here is really well respected by the medical community and his patients, so I'm hopeful - but it has to happen soon. I'm losing control of things I don't want to.
🙁

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