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Pseudomonas aureginosa: When did your doctor decide to start treating?
When were your pseudomonas treated and how did your doctor decide it was time to do it? I have bronchiectasis, MAC and was diagnosed with pseudomonas in August. My pneumonologist thought it was colonized and I did not have symptoms so she decided not to treat it. I had my sputum culture last week and again pseudomonas was grown. Now she wants me to decide if I want treatment with Cipro if I think I need it. How do I know if I need it? I asked if they counted the size of colonies (I don't know if they even ever do it) but the nurse who called me did not know the answer. So if you had pseudomonas, please respond to my post and share how yours was delt with. I am scared to start another antibiotic and is it better to start early the treatment or wait for symptoms (what kind?)?
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update….i brought up a sputum last Thursday and it was really ugly… I had a lab cup which I had kept on my nightstand so I quickly got it and spit the sputum in it. My daughter works at the hospital where the lab is so I called and she came to pick it up and get it to the lab. The lab report posted to my chart and lo and behold it was Pseudomonas… I however have no symptoms and the IV for the past 21 day treatment was just pulled a week ago. Last year, a lung infection was among the four that I had, one after another.
I read that if you’re not symptomatic that you do not necessarily have to be treated … anyone have this experience ? Thsnks Kay B .
@kaybast
Since Pseudomonas is so difficult if not impossible to get rid of (unless treated aggressively early on) it will show up again. Even if you are not symptomatic you can attempt to keep it at bay with nebulizing twice a day and using one of the inhaled antibiotics for Pseudo, if you tolerate. Also Brinsupri seems to help most people (if your Pseudo under control).
@irenea8 thank you for the recommendations . I see my Pulmonologist next week and will address those items with him… appreciate your time ! Kay B.
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1 Reaction@kaybast I was not informed much about the PA. But I was very sick drowning in mucus for 7 m. Then a fever came plus chills shaking . Then we tried basic antibiotics but nothing worked. So then went on midline IV for 14 days. Which later I found out I was told by ID doc that we were treating to push PA back. So far 2 m. Later after IV . I m still doing ok
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1 Reaction@smc17
Good news after 2 months still doing ok with Pseudo knocked back! Which antibiotic IV did they select?
Cefipime
@smc17 that’s good news ! Keep up the good work !
After my last 21 day treatment(PICC line IV Zosyn) which ended 2 weeks ago , my ENT Dr took a culture and it read “no growth” !
So needless to say was a bit disappointed when this latest sputum from the lung showed Moderate Psuedomonas !
Guess it can rear its head whenever and wherever it wants …..and we continue to put up the good fight don’t we ?
Best to you !
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1 Reaction@kaybast im praying for you and anyone who has been dealt this hand. Or shall I say lung. Ive lived life right. Eat quite well. Never smoked or drank. Exercise. Ive been told we will not get rid of it. But must find a way to live with it the best we can. Keep me informed . I will do the same
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