Cannabis in cancer therapy

My husband has late stage metastatic cancer. This will most probably will kill him very soon or a little later. We are not avoiding conventional treatment but we may delay it for a little later. It is my husband’s choice. For the next month he will have something to feel hopeful about.

@eightball123

As a wife I understand you conundrum and I am really so sorry that your husband has such advanced case of PC. : ((( Please don't feel that anybody here is judging you or your dear husband, I certainly am not. We are all different and we all deal with life threatening events in different ways. On top of everything, at the end it is not your decision but his, and only he knows what he can or can not endure : (. As long as he is aware of all available options and that those options are not always with terrible side effects, it is OK. Unfortunately nobody knows how one will react to any treatment. Just for you to know, we here have patients who were diagnosed with advanced PC and metastases and had successful treatment and are living very productive happy lives now. I am telling this just so he knows that if this oil treatment does not help that he will have other options too.

I am wishing your husband healing and peace with whatever choice he makes. If he ever decides to take regular route, we will be here for him < 3.

@eightball123 Your husband’s choice is his to make and hopefully he is at peace with the very high possibility that this unfounded treatment may not be successful.
Personally, I had never heard of Rick Simpson Oil until your post. But I have read a lot about it since; sorry to say, but it sounds like every other alternative treatment out there - including the testimonials heard second or third hand. I apologize for my blunt talk, but this topic resonates with me.
However, very important is what is probably true about this compound: it ameliorates and soothes the bad side effects of anti cancer treatment.
It is well known that full spectrum cannabinoids (THC plus CBD and others) DO have a positive effect on nausea, pain and inflammation.
That said, conventional treatment with cancer suppressing hormones and chemotherapy for metastases in conjunction with RSO might provide the best chance for your husband’s survival.
I mean, if the conventional treatments are made tolerable by the RSO, wouldn’t he want the chance to live a few more years with you? Wouldn’t you?
I do not blame him for trying to fight this battle a different way, but if he’s going to fight, AT LEAST go down swinging and throw all you can at it. Do not be afraid that the treatment is worse than the disease…it is not.
I wish you and your husband the best and I hope whatever you choose is successful.
Phil

@jeffmarc
You are so very lucky to weather the horrors (for some) of ADT. Myself: really miserable and VERY angry about the SE's not mentioned by my oncologist. Blood clot in lower leg, AFIB, raging insomnia, Now itching torture! Very weak and unmotivated to do what I did in my life before the "therapy" of ADT. I now know totally why some just give up and quit all the pills,surgery and radiation when nothing seems to work.
Barely hanging on here
SW

@eightball123
If someone has an aggressive case of prostate cancer, they need to treat it sooner rather than later.

I know a few people who had very aggressive cases that are still around 10 years later because they treated their cancer consistently in are living as a result.

Radiation for prostate cancer has very few side effects from most people. If you don’t want to do ADT, then you can use estradiol patches, Which have been proved as effective as ADT, but have many fewer side effects. Even if you do ADT, adding estradiol patches can reduce the side effects as well. Here’s some more information about using estradiol.
https://connect.mayoclinic.org/discussion/a-note-from-richard-wassersug-phd-about-the-use-of-estradiol-over-adt/
https://ancan.org/
Prostate cancer is extremely painful if you let it go untreated. I’ve seen my father die in excruciating pain from prostate cancer. Be careful, Alternate treatments may leave you with a very short timeline.

FECO
We have just finished the first month of the RSO dosing protocol . It has been challenging. The first month is mainly about building one’s tolerance to the massive doses of THC that make up the next ywo months, but I am happy to say the PSA follow up to the first month showed a decrease from 168 to 102. We consider that enough of a decrease to continue with the maximum dose as described by the protocol. I think our oncologist will support this decision.

Hello, I read your post (and your previous post) of course looked up feco and rso on the web. It is interesting that your partners PSA went down but 102 is still very high. I tried an alternative therapy just after my diagnosis and while my 66 PSA went down to 58, then 50, it went back of to 55 the third month. At that point I realized that I was grasping at straws and ordered the ADT drugs. Still, I held off taking them for a week (after paying 800 dollars for them) not wanting my life to change. Guess what? My life had already changed when i found out I have stage 4 metastatic PCa. 17 lit up nodes on the pet scan. 12 out of 14 needles postive, Gleason 4+4=8. I had been reading the posts here for weeks and finally posted one of my own and several very smart people said: take the ADT drugs. Orgovyx and Zytiga. I did and one month later PSA is 2.8 and T is 20. Testing again end of this month. I will have to say that the side effects are not too difficult to deal with (hot flashes!) but it is a small price to pay, knowing that I have slowed the black spider inside me WAY down. Hoping to put it to sleep for a while. Like your partner I am hoping for a good five years with quality of life my main focus. In some ways I consider myself lucky that I skipped over the verydifficult treatment decisions . ADT and chemo (in the future) are what I am looking at. I respect you trying rso protocol but as you know...no real clinical proof that it is a "cure". An adjunct treatment? Sure. I am certainly not telling you what to do, prostate cancer and its treatment are very personal decisions that each of us have to make. I will say that my Dr said to me my last visit: "prostate cancer is a business". I knew that, but coming from a Dr it drove the point home....as patients we represent 10s of thousands of dollars to the medical business model. My respect for him went up about 100%! I am willing to bet that the rso protocol business model is costing you money also. All I can say is I was very relived to see my numbers go down (we are all waiting on the numbers), Thanks for reading this post and I hope you will keep the board posted when you get your new results. I will be thinking about you, it is a difficult place to be, mentally and physically.

@stage4lovolmetpc
Don’t plan on five years plan on 10 to 20 minimum. The guy who founded and runs the ancan.org Organization had Gleason eight, went to UCSF and had radiation 17 years ago. He’s still alive without any reoccurrence. He runs multiple online meetings every month with many people part of the organization. I’ve attended the advanced prostate cancer online weekly meetings there for at least five years and you can’t beat the amount of information you get just being in a meeting. You can go to the website and Watch one of the recent meetings, So much information.

I know many people with Gleason nine that have gone 20 and 30 years without reoccurrence. Of course they have come into the meeting and say reoccurrence occurred and are asking for advice, but they still have many years to live since they’re having their first reoccurrence.

I was a 4+3 but I have BRCA2, which makes it very aggressive. It has come back four times after surgery and radiation. I’m still alive 16 years later And I’ve been undetectable for the last 20 months while I’ve been on Orgovyx and Nubeqa. Prostate cancer has become a chronic disease for most people not a fatal disease,

@stage4lovolmetpc Thanks for responding. The only reason we tried this alternative before going the conventional route is that we were in direct contact with a person who just finished this protocol last year and he had recommended it to two of his friends. Like with us at the end of the first month, the tolerance build up month, hiPSA had gone down about 50% so he chose to follow the full dosage protocol for two more months. At the end of that time his PSA was down to 1.6 . He had lost weight, he was fatigued from nausea and vomiting , but two weeks after stopping the dosing he started to revive. It took him five months. To regain his weight and strength and he continued to get regular PSAs and it continued to fall to presently to.60.
His oncologist followed his progress and tell him he is Cancer free without out ADT therapy. He is muchyounger than my husband , so thst was important to him.

This dosing therapy is challenging , especially since we have to administer it ourselves , but are willing to give it a try since the prognosis with conventional therapy wasn’t that great. I will come back and post again when we see how it turns out

@eightball123
If you want to get your PSA down to the minimum and your testosterone down, you should consider the estradiol patch, The patch study, which was recently released shows that it reduces testosterone justice, effectively as ADT with many fewer side effects.

You don’t get hot flashes it’s not much better with your bone strength and it doesn’t reduce interest in sex like ADT. I know one guy has been on it for 22 years. It’s kept his cancer in control.

HIS PSA is awfully high and that can just cause metastasis to start to grow.