Connect
← Return to Cannabis in cancer therapy
Discussion
Comment receiving replies
Hello, I read your post (and your previous post) of course looked up feco and rso on the web. It is interesting that your partners PSA went down but 102 is still very high. I tried an alternative therapy just after my diagnosis and while my 66 PSA went down to 58, then 50, it went back of to 55 the third month. At that point I realized that I was grasping at straws and ordered the ADT drugs. Still, I held off taking them for a week (after paying 800 dollars for them) not wanting my life to change. Guess what? My life had already changed when i found out I have stage 4 metastatic PCa. 17 lit up nodes on the pet scan. 12 out of 14 needles postive, Gleason 4+4=8. I had been reading the posts here for weeks and finally posted one of my own and several very smart people said: take the ADT drugs. Orgovyx and Zytiga. I did and one month later PSA is 2.8 and T is 20. Testing again end of this month. I will have to say that the side effects are not too difficult to deal with (hot flashes!) but it is a small price to pay, knowing that I have slowed the black spider inside me WAY down. Hoping to put it to sleep for a while. Like your partner I am hoping for a good five years with quality of life my main focus. In some ways I consider myself lucky that I skipped over the verydifficult treatment decisions . ADT and chemo (in the future) are what I am looking at. I respect you trying rso protocol but as you know...no real clinical proof that it is a "cure". An adjunct treatment? Sure. I am certainly not telling you what to do, prostate cancer and its treatment are very personal decisions that each of us have to make. I will say that my Dr said to me my last visit: "prostate cancer is a business". I knew that, but coming from a Dr it drove the point home....as patients we represent 10s of thousands of dollars to the medical business model. My respect for him went up about 100%! I am willing to bet that the rso protocol business model is costing you money also. All I can say is I was very relived to see my numbers go down (we are all waiting on the numbers), Thanks for reading this post and I hope you will keep the board posted when you get your new results. I will be thinking about you, it is a difficult place to be, mentally and physically.
Replies to "Hello, I read your post (and your previous post) of course looked up feco and rso..."
@stage4lovolmetpc Thanks for responding. The only reason we tried this alternative before going the conventional route is that we were in direct contact with a person who just finished this protocol last year and he had recommended it to two of his friends. Like with us at the end of the first month, the tolerance build up month, hiPSA had gone down about 50% so he chose to follow the full dosage protocol for two more months. At the end of that time his PSA was down to 1.6 . He had lost weight, he was fatigued from nausea and vomiting , but two weeks after stopping the dosing he started to revive. It took him five months. To regain his weight and strength and he continued to get regular PSAs and it continued to fall to presently to.60.
His oncologist followed his progress and tell him he is Cancer free without out ADT therapy. He is muchyounger than my husband , so thst was important to him.
This dosing therapy is challenging , especially since we have to administer it ourselves , but are willing to give it a try since the prognosis with conventional therapy wasn’t that great. I will come back and post again when we see how it turns out
Connect
@stage4lovolmetpc
Don’t plan on five years plan on 10 to 20 minimum. The guy who founded and runs the ancan.org Organization had Gleason eight, went to UCSF and had radiation 17 years ago. He’s still alive without any reoccurrence. He runs multiple online meetings every month with many people part of the organization. I’ve attended the advanced prostate cancer online weekly meetings there for at least five years and you can’t beat the amount of information you get just being in a meeting. You can go to the website and Watch one of the recent meetings, So much information.
I know many people with Gleason nine that have gone 20 and 30 years without reoccurrence. Of course they have come into the meeting and say reoccurrence occurred and are asking for advice, but they still have many years to live since they’re having their first reoccurrence.
I was a 4+3 but I have BRCA2, which makes it very aggressive. It has come back four times after surgery and radiation. I’m still alive 16 years later And I’ve been undetectable for the last 20 months while I’ve been on Orgovyx and Nubeqa. Prostate cancer has become a chronic disease for most people not a fatal disease,