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Replies to "FECO We have just finished the first month of the RSO dosing protocol . It has..."
Yes, we know that there haven’t been clinical trials that support this protocol. Our only real information is from a few people, five to be exact, who beat the cancer. One of them we have been in regular contact with as we go through this. We know that we may be grasping at straws. At the same time we have read about others experience with ADT, chemo, radiation , and that doesn’t offer much of any guarantee of quality of life either, especially since at , best, it offers remission . We may end having to go that route. The worst case is that neither works. Our RSO “friend “ stopped his treatment in September with a PSA of 2.4, he still doses himself about once a month or two and gets regular tests. His most recent confined the decline down to .6. Maybe these five people are just medical anomalies, but by time you are approaching elderly you know you only have a short time left, why not try something bold?
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Hello, I read your post (and your previous post) of course looked up feco and rso on the web. It is interesting that your partners PSA went down but 102 is still very high. I tried an alternative therapy just after my diagnosis and while my 66 PSA went down to 58, then 50, it went back of to 55 the third month. At that point I realized that I was grasping at straws and ordered the ADT drugs. Still, I held off taking them for a week (after paying 800 dollars for them) not wanting my life to change. Guess what? My life had already changed when i found out I have stage 4 metastatic PCa. 17 lit up nodes on the pet scan. 12 out of 14 needles postive, Gleason 4+4=8. I had been reading the posts here for weeks and finally posted one of my own and several very smart people said: take the ADT drugs. Orgovyx and Zytiga. I did and one month later PSA is 2.8 and T is 20. Testing again end of this month. I will have to say that the side effects are not too difficult to deal with (hot flashes!) but it is a small price to pay, knowing that I have slowed the black spider inside me WAY down. Hoping to put it to sleep for a while. Like your partner I am hoping for a good five years with quality of life my main focus. In some ways I consider myself lucky that I skipped over the verydifficult treatment decisions . ADT and chemo (in the future) are what I am looking at. I respect you trying rso protocol but as you know...no real clinical proof that it is a "cure". An adjunct treatment? Sure. I am certainly not telling you what to do, prostate cancer and its treatment are very personal decisions that each of us have to make. I will say that my Dr said to me my last visit: "prostate cancer is a business". I knew that, but coming from a Dr it drove the point home....as patients we represent 10s of thousands of dollars to the medical business model. My respect for him went up about 100%! I am willing to bet that the rso protocol business model is costing you money also. All I can say is I was very relived to see my numbers go down (we are all waiting on the numbers), Thanks for reading this post and I hope you will keep the board posted when you get your new results. I will be thinking about you, it is a difficult place to be, mentally and physically.