GLP-1s, weight loss, and Neuropathy

The brand name product used in my IVIG infusion is Gamunex - C.

This is first-line treatment for CIDP. My understanding is that the medication is a cocktail of blood platelets from some 6 to 10 thosand people, designed to modify my auto-immune system.

My conclusion is that minimal stretching and strengthening exercises are essential to maximizing the results
of IVIG treatment. The same is likely true for CIDP patients who are not receiving IVIG.

@constable12 hello, I am going to
Penn Hospital/University of Pa on April 6th for my dx of CIDP. In the meantime should I try eating Cashews? How. Raw, unsalted and how many a day? Does it help. Also what is Thick Carpet Waffle Board? Thank you for any help you can give me.

I eat 6 - 8 raw, unsalted cashews every morning and have done so for about 2 years.

The waffle board reference is to the physical stress experienced when I stand for roughly 5 minutes or so intervals on thick carpet (while singing in the church choir).

Both of these started at the same time, roughly two years ago, and both seem to have contributed to the beginning of substantial PN remission.

It is logical that I would continue to benefit, although this is more difficult to assess as a result of the fact that I
have been taking IVIG infusions for almost a year.

I have not been diagnosed with neuropathy, my PC doctor says I don't have it. What I have I didn't know. My feet and hands tinkle at times to point of numbness especially when trying to go to bed. I am sitting in recliner as I write this and my hands have the stinging/numbness sensations. I have a 3rd vertebrae out of wack (just found out due to a CAT scan a year ago). I have thought my hands and feet maybe due to vertebrae. Not sure. My point to all this - is have been on zepbound for a year now. It has not helped with the symptoms I have discussed (if they are neuropathy related). If anything. I havr noticed my numbness worse than a year ago. My symptoms wake me up at night. I'm lucky if I get over three to four hous of sleep at night. So frustrating. People have said when you start trying to get professional diagnosis of nerve issues that one "goes in circles" and spending a large amount of money trying to get resolution . One lady spent over a year with doctors trying to find out reason for the very same issues I have. She has no resolutions. She has had all the scans. MRIs, vitamin deficiency testing to find no answer. She has even been to specialist at Duke hospital. For this discussion, zepbound did NOT help. Would be interested if anyone has experience with the tickling/numbness issues that I have.

@tsinnc I agree with you. I have a friend that has been overweight all his life. I live with him and I can tell you that he eats less than I do at 5'2 and 119 lbs. I cook from scratch and he still doesn't loose weight. Many times it is genetic. He is wanting to start GLP-1 but cautious of the side effects.