Anyone have mild neuropathy? Treatment?

Posted by ksue3 @ksue3, Mar 21 8:54am

I had chemo in 2024 and have been on AI drugs for 19 months. My hands and feet are stiff and ache. I do think I have some mild to moderate neuropathy. Will talk to my oncologist next appt. Has anyone found any successful treatment for neuropathy?

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I have neuropathy in my feet. I have learned to always wear supportive shoes. There are otc creams that help. Other than that, I am open to suggestions others might have on this topic.

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I acquired neuropathy in my toes and balls of my feet during taxol chemo treatment 2 years ago. I have been getting acupuncture and I do believe that it has helped, it's much better than it was in the beginning. I even used the cold mittens and gloves so I'm glad I did that or maybe it would have been worse. My hands have been okay. Wishing you the best in your recovery.

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I got bad neuropathy with last chemo back in 2023. Initially I was told it would go away in “several weeks” which when clarified, was 10-12 weeks. Mine never did. So at about 7 months, I questioned if, since it was still present, would this be lifetime. He suggested alpha lipoic acid, 600mg twice daily. Took it for about 6 months and it cleared over 90% of the neuropathy for me.

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I have neuropathy in feet and hands. Have finished chemo a year January past. Have marginal zone lymphoma of the spleen plus thyroid cancer. Some nights I have terrible leg cramps. I do take magnesium and I have it in spray form also.

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Thanks for the info all. Just as my neuropathy in my fingers is showing now, I read your post. I will ask my medical team about your suggestions. My Taxol/Carboplatin was in later 2021. It stems from that. But i also had a Bone Marrow transplant in April of 2024 so i had melphalan and other chemo's.

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I developed neuropathy in feet and hands after chemo 2025. I use CBD rub from a medicinal pharmacy. Had to get a medical MJ card order from my dr. Put it on feet AM and PM. Really helps me through the night. Pain and restlessness is much better. Hang in there.

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I have neuropathy in feet and hands. Have finished chemo a year January past. Have marginal zone lymphoma of the spleen plus thyroid cancer. Some nights I have terrible leg cramps. I do take magnesium and I have it in spray form also.

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@annieflorence1, welcome. You may also wish to join the discussions in these related support groups:
- Blood Cancers & Disorders Support Group https://connect.mayoclinic.org/group/blood-cancers-disorders/
(Search for marginal zone lymphoma https://connect.mayoclinic.org/group/blood-cancers-disorders/)

- Thyroid Cancer Support Group https://connect.mayoclinic.org/group/thyroid-cancer/

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I've developed Morton's neuroma--no chemo--I assume this is neuropathy. Taking Exemestane & Ribocyclib (Kisqali). It can be extremely painful--or show just as numbness. Can't predict which!

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I had severe neuropathy for a few months after Taxol (Paclitaxel) chemo. I learned about taking Claritin for neuropathy through Science Direct - Elsevier, Inc. published research. I took two Claritin every morning for about a year. It controlled my symptoms and I no longer need to take it. It is an off-label use that many physicians don’t know about or bother to research. My oncologist was very interested and approving of the results but PCPs just blow it off. I was miserable until I started taking Claritin. I am three years out from finishing chemo. I have tingling fingers sometimes but it is tolerable.

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I got neuropathy from a 6-round carboplatin paclitaxal treatment back in 2023. Early on I had electrical sensations that seemed to move around my legs and feet. I took gabapentin for that and it seemed to work; it didn't work on numbness though. Tried magnesium supplements at night which sort of worked. Numbness and tingling in toes and four fingers in both hands also experienced. Nothing seemed to work for.
Have been on Enhertu for the past year (2025-26) and have not noticed any change in symptoms. What I have experienced is severe drying and then cracking along side the sides of finger tips, sometimes deep enough to cause inflammation and pain. Nails are now brittle and split constantly. The other day I noticed the same on my toe nails. They're so dry that when I cut them the nails comes off like dust.
Doctors have upped my B12 intake, saying it could alleviate the neuropathy somewhat. Although I still magnesium, it may be fairly low dose and which I take in the morning with my D3. I plan to take another dose in the evening before lights out to see if this helps.

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