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Anyone had success with Low-Dose Naltrexone for PEM, Chronic Fatigue?

Posted by junelightgoldberg @junelightgoldberg, Feb 11 8:15pm

I have Long Covid with Post Exertional Malaise / Chronic Fatigue. I just started Low-Dose Naltrexone last week. Has anyone found this helpful?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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carlosmayo | @carlosmayo | Apr 7 11:18am
In reply to @junelightgoldberg "@carlosmayo Sounds great. I can’t imagine Abilify causing such a great recovery of fatigue, so I’m..." + (show)
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@carlosmayo
Sounds great. I can’t imagine Abilify causing such a great recovery of fatigue, so I’m assuming LDN. But then again who would have thought that Naltrexone in minute doses could affect our bodies in so many ways. What did your doctor say about the choice of Abilify?

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@junelightgoldberg
Thank you for the message. I am at the Stanford ME/CFS/LC clinic and I think Abilify is their kind of standard second drug to try after LDN. It has now been more than 3 years so I dont remember that they said about it. I think Abilify helped me a lot but it is impossible to tell because pretty quickly I was taking both LDN and Abilify. Hope that helps. Best, Carlos

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drbf | @drbf | Apr 7 11:25pm

I've only been on it a few weeks and am at 3 mg. It is helping my gut tremendously.

If I keep up on my sleep hygiene, I think it is giving me a few hours of energy per day so far.

Those are huge improvements for me.

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elliep | @elliep | Apr 8 9:03am

yes. LDN was great for energy.
try to keep the rose as low as possible as long as possible.

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junelightgoldberg | @junelightgoldberg | Apr 8 9:26am
In reply to @drbf "I've only been on it a few weeks and am at 3 mg. It is helping..." + (show)
Profile picture for drbf @drbf

I've only been on it a few weeks and am at 3 mg. It is helping my gut tremendously.

If I keep up on my sleep hygiene, I think it is giving me a few hours of energy per day so far.

Those are huge improvements for me.

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@drbf
Good to hear you’re responding so well. Next week my LDN dose goes up to 3 mg. No improvement yet, but, but some studies show it takes up to 9 months for some to respond. I remain hopeful.

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onpainsufferer | @onpainsufferer | Apr 8 12:34pm
In reply to @carlosmayo "@junelightgoldberg Thank you for the message. I am at the Stanford ME/CFS/LC clinic and I think..." + (show)
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@junelightgoldberg
Thank you for the message. I am at the Stanford ME/CFS/LC clinic and I think Abilify is their kind of standard second drug to try after LDN. It has now been more than 3 years so I dont remember that they said about it. I think Abilify helped me a lot but it is impossible to tell because pretty quickly I was taking both LDN and Abilify. Hope that helps. Best, Carlos

Jump to this post

@carlosmayo
How long were you on LDN before they added Abilify? I’ve just gotten into Stanford and they started me on LDN. Still increasing dosage and having some side effects at new dose. I have noticed possible reduction in the nagging joint/muscle pains throughout my body in just 6 weeks, but not the migraine and occipital nerve pain and dizziness in my head, nor the constant fatigue. But I know LDN takes months before I’ll see any changes on the more serious, debilitating issues.

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carlosmayo | @carlosmayo | Apr 8 6:26pm
In reply to @onpainsufferer "@carlosmayo How long were you on LDN before they added Abilify? I’ve just gotten into Stanford..." + (show)
Profile picture for onpainsufferer @onpainsufferer

@carlosmayo
How long were you on LDN before they added Abilify? I’ve just gotten into Stanford and they started me on LDN. Still increasing dosage and having some side effects at new dose. I have noticed possible reduction in the nagging joint/muscle pains throughout my body in just 6 weeks, but not the migraine and occipital nerve pain and dizziness in my head, nor the constant fatigue. But I know LDN takes months before I’ll see any changes on the more serious, debilitating issues.

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@onpainsufferer

I was on LDN for six months before starting Abilify.

Congrats on getting in to the Stanford clinic. Although they are trying to help a lot of patients with little resources, they do a wonderful job - smart and very caring.

Best wishes to you
Carlos

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